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Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Data and Specimen Hub (DASH)

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Attention: This repository is under review for potential modification in compliance with Administration directives.

 

Important Notice:
NICHD is in the process of migrating DASH to a new platform. DASH is providing support for new study submissions during the migration. Email DASHCurator@mail.nih.gov with study submission inquiries.

Please contact SupportDASH@mail.nih.gov with all other inquiries. We appreciate your patience during this transition.

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    Document Type
    Study Name
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    Study Type
    NICHD Research Networks and Initiatives
    Source Repository
    9240 Total Results
    Document

    ATN 137 Study Recruitment Log

    Participation in a Biomedical HIV Prevention Clinical Trial: Perspectives of Younger and Older Young Men Who Have Sex With Men (YMSM) and Transgender Women Who Have Sex With Men (ATN 137)
    Provides a form for collecting recruitment and demographic information with study elements completed and dates; Annotated with SAS variables
    Data Collection Instruments
    HIV/AIDS, Child Health
    Other Types of Clinical Research
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pubmed/28967541
    Truvada, Qualitative interview, PrEP/Pre-exposure Prophylaxis, HIV/Human immunodeficiency virus
    No
    All data for the study is available in DASH
    Document

    De-identification Method

    Molecular Bases of Response to Copper Treatment in Menkes Disease, Related Phenotypes, and Unexplained Copper Deficiency (09-CH-0059)
    De-identification Method
    De-Identification Methodology
    Menkes Disease, Child Health
    Clinical Trial - NIH defined
    Single Site
    Menkes disease, ATP7A, Copper histidinate, Occipital horn syndrome (OHS)
    No
    No
    None
    All data for the study is available in DASH
    Denver Development Screening Test (DDST) (https://link.springer.com/referenceworkentry/10.1007%2F978-1-4419-1698-3_613)
    1
    Document

    NICHD-2013-MTH01 - Case Report Forms

    Pharmacokinetics of Multiple Dose Methadone in Children (BPCA MTH01)
    NICHD-2013-MTH01 - Case Report Forms
    Data Collection Instruments
    Pharmacology, Child Health
    Clinical Trial - NIH defined
    Multi Site
    N/A
    PK, Pediatrics, Methadone
    No
    All data for the study is available in DASH
    MedDRA V18.0
    16
    Document

    NICHD-2013-MTH01 - Data Dictionary

    Pharmacokinetics of Multiple Dose Methadone in Children (BPCA MTH01)
    NICHD-2013-MTH01 - Data Dictionary
    Codebook/Variable Dictionary
    Pharmacology, Child Health
    Clinical Trial - NIH defined
    Multi Site
    N/A
    PK, Pediatrics, Methadone
    No
    All data for the study is available in DASH
    MedDRA V18.0
    16
    Document

    NICHD-2013-MTH01 - PK Analysis Data Dictionary

    Pharmacokinetics of Multiple Dose Methadone in Children (BPCA MTH01)
    NICHD-2013-MTH01 - PK Analysis Data Dictionary
    Codebook/Variable Dictionary
    Pharmacology, Child Health
    Clinical Trial - NIH defined
    Multi Site
    N/A
    PK, Pediatrics, Methadone
    No
    All data for the study is available in DASH
    MedDRA V18.0
    16
    Document

    NICHD-2013-MTH01 - Rules for Data Redaction

    Pharmacokinetics of Multiple Dose Methadone in Children (BPCA MTH01)
    NICHD-2013-MTH01 - Rules for Data Redaction
    De-Identification Methodology
    Pharmacology, Child Health
    Clinical Trial - NIH defined
    Multi Site
    N/A
    PK, Pediatrics, Methadone
    No
    All data for the study is available in DASH
    MedDRA V18.0
    16
    Document

    NICHD-2013-MTH01 Protocol and Amendments

    Pharmacokinetics of Multiple Dose Methadone in Children (BPCA MTH01)
    NICHD-2013-MTH01 Protocol and Amendments
    Study Protocol
    Pharmacology, Child Health
    Clinical Trial - NIH defined
    Multi Site
    N/A
    PK, Pediatrics, Methadone
    No
    All data for the study is available in DASH
    MedDRA V18.0
    16
    Document

    NICHD-2013-MTH01 Statistical Analysis Plan

    Pharmacokinetics of Multiple Dose Methadone in Children (BPCA MTH01)
    NICHD-2013-MTH01 Statistical Analysis Plan
    Data Analysis Plan
    Pharmacology, Child Health
    Clinical Trial - NIH defined
    Multi Site
    N/A
    PK, Pediatrics, Methadone
    No
    All data for the study is available in DASH
    MedDRA V18.0
    16
    Document

    Study Protocol

    Adaptive Antiretroviral Therapy Adherence Interventions for Youth Living with HIV through Text Messaging and Cell Phone Support Embedded within the Sequential Multiple Assignment Randomized Trial (SMART) Design (ATN 144)
    SMART ATN Study Protocol
    Study Protocol
    Child Health, HIV/AIDS
    Clinical Trial - NIH defined
    Multi Site
    https://www.etr.org/scaleitup/
    https://www.researchprotocols.org/2018/12/e11183/, https://www.researchprotocols.org/2019/2/e11204/
    Youth Living with HIV (YLWH), HIV, Adherance, SMART, M-Health, Implementation Science
    No
    No
    None
    All data for the study is available in DASH
    Behavior Rating Inventory of Executive Function Adult Version (BRIEF-A) (https://www.parinc.com/Products/Pkey/25)
    1
    Document

    12-Month Mother Interview

    National Children's Study (NCS)
    ARS 12-Month Mother Interview
    Data Collection Instruments
    Women's Health, Child Health, Breastfeeding and Breast Milk, Infant Care and Infant Health, Pregnancy
    Other Types of Clinical Research
    Multi Site
    https://www.nichd.nih.gov/research/supported/NCS
    https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000662.v1.p1
    https://pediatrics.aappublications.org/content/137/Supplement_4/S213, https://pediatrics.aappublications.org/content/137/Supplement_4/S219, https://pediatrics.aappublications.org/content/137/Supplement_4/S231, https://pediatrics.aappublications.org/content/137/Supplement_4/S239, https://pediatrics.aappublications.org/content/137/Supplement_4/S248
    Mothers, Maternal Health, Longitudinal Studies, Infant, Newborn, Environmental Exposure, Biospecimen
    No
    No
    None
    All data for the study is available in DASH
    Available
    Kaufman Brief Intelligence Test, 2nd Edition (K-BIT2) (http://www.pearsonclinical.com/psychology/products/100000390/kaufman-brief-intelligence-test-second-edition-kbit-2.html), Ages & Stages Questionnaires®, Third Edition (ASQ-3™) (http://agesandstages.com/), Brief Symptom Inventory (BSI) (http://www.pearsonclinical.com/psychology/products/100000450/brief-symptom-inventory-bsi.html), Infant & Toddler Sensory Profile (ITSP) (http://www.pearsonclinical.com/therapy/products/100000389/infanttoddler-sensory-profile.html), NIH Tool Box (http://www.nihtoolbox.org/), Brief Infant Toddler Social Emotional Assessment (BITSEA) (https://eprovide.mapi-trust.org/instruments/brief-infant-toddler-social-emotional-assessment)
    156
    Document

    12-Month Mother SAQ

    National Children's Study (NCS)
    ARS 12-Month Mother SAQ
    Data Collection Instruments
    Women's Health, Child Health, Breastfeeding and Breast Milk, Infant Care and Infant Health, Pregnancy
    Other Types of Clinical Research
    Multi Site
    https://www.nichd.nih.gov/research/supported/NCS
    https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000662.v1.p1
    https://pediatrics.aappublications.org/content/137/Supplement_4/S213, https://pediatrics.aappublications.org/content/137/Supplement_4/S219, https://pediatrics.aappublications.org/content/137/Supplement_4/S231, https://pediatrics.aappublications.org/content/137/Supplement_4/S239, https://pediatrics.aappublications.org/content/137/Supplement_4/S248
    Mothers, Maternal Health, Longitudinal Studies, Infant, Newborn, Environmental Exposure, Biospecimen
    No
    No
    None
    All data for the study is available in DASH
    Available
    Kaufman Brief Intelligence Test, 2nd Edition (K-BIT2) (http://www.pearsonclinical.com/psychology/products/100000390/kaufman-brief-intelligence-test-second-edition-kbit-2.html), Ages & Stages Questionnaires®, Third Edition (ASQ-3™) (http://agesandstages.com/), Brief Symptom Inventory (BSI) (http://www.pearsonclinical.com/psychology/products/100000450/brief-symptom-inventory-bsi.html), Infant & Toddler Sensory Profile (ITSP) (http://www.pearsonclinical.com/therapy/products/100000389/infanttoddler-sensory-profile.html), NIH Tool Box (http://www.nihtoolbox.org/), Brief Infant Toddler Social Emotional Assessment (BITSEA) (https://eprovide.mapi-trust.org/instruments/brief-infant-toddler-social-emotional-assessment)
    156
    Document

    12-month Stressor Checklist DCF (English)

    Environmental influences on Child Health Outcomes (ECHO)-wide Cohort (ECHO Cohorts)
    Release 1Not Latest
    12-month Stressor Checklist Data Collection Form (English)
    Data Collection Instruments
    Child Health, Breastfeeding and Breast Milk, Autism Spectrum Disorder (ASD), Attention Deficit/Hyperactivity Disorder, Early Labor and Birth, Early Puberty, Gestational Diabetes, Infant Care and Infant Health, Obesity and Overweight, Preeclampsia and Eclampsia, Pregnancy, Preterm Labor and Birth, Sleep
    Other Types of Clinical Research
    Multi Site
    https://echochildren.org/
    https://pubmed.ncbi.nlm.nih.gov/34494118, https://pubmed.ncbi.nlm.nih.gov/34561347, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5996976/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6957289/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7183426/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7794036/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8012230/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8129904/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8204620/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9088705/
    Neurodevelopment, Asthma, Sleep, Autism, Obesity, Prenatal Morbidity, Diet, Smoking, Chemicals, Psychosocial Determinants
    No
    No
    None
    Certain study data is not available in DASH
    The data in this release are based on an August 31, 2021 data lock. It excludes genetic and epigenetic data and all data from the Navajo Birth Cohort.
    Data sharing agreement with the Navajo Nation does not permit inclusion in a public use repository. Genomic data will be shared per NIH's Genomic Data Sharing (GDS) policy.
    ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html)
    ICD-9, ICD-10, RxNorm
    931
    Document

    12-month Stressor Checklist DCF (English)

    Environmental influences on Child Health Outcomes (ECHO)-wide Cohort - 2nd Release (ECHO Cohort v2)
    Release 2Not Latest
    12-month Stressor Checklist Data Collection Form (English)
    Data Collection Instruments
    Child Health
    Other Types of Clinical Research
    Multi Site
    https://echochildren.org/
    https://pubmed.ncbi.nlm.nih.gov/36963379/, https://pubmed.ncbi.nlm.nih.gov/29567045, https://pubmed.ncbi.nlm.nih.gov/31850800, https://pubmed.ncbi.nlm.nih.gov/32066883, https://pubmed.ncbi.nlm.nih.gov/33418560, https://pubmed.ncbi.nlm.nih.gov/33591054, https://pubmed.ncbi.nlm.nih.gov/33999100, https://pubmed.ncbi.nlm.nih.gov/34131290, https://pubmed.ncbi.nlm.nih.gov/34467678, https://pubmed.ncbi.nlm.nih.gov/34494118
    neurodevelopment, asthma, sleep, autism, obesity, prenatal morbidity, diet, smoking, chemicals, psychosocial determinants
    No
    No
    None
    Certain study data is not available in DASH
    The data in this release are based on an August 31, 2022 data lock. It excludes genetic and epigenetic data and all data from the Navajo Birth Cohort. Additionally, it excludes custom data provided by cohorts not part of the study's protocol.
    These data are not currently available to the public.
    Available
    ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html), Behavior rating inventory of executive function (BRIEF) (https://www.parinc.com/Products/Pkey/23), Behavior rating inventory of executive function 2 (BRIEF 2) (https://www.parinc.com/Products/Pkey/24), Behavior Rating Inventory of Executive Function-Preschool (BRIEF-P) (https://www.parinc.com/Products/Pkey/26)
    ICD-9, ICD-10, RxNorm
    385
    Document

    12-month Stressor Checklist DCF (English)

    Environmental influences on Child Health Outcomes (ECHO)-wide Cohort - 3rd Release (ECHO Cohorts v3)
    Release 3Latest
    12-month Stressor Checklist Data Collection Form (English)
    Data Collection Instruments
    Child Health
    Other Types of Clinical Research
    Multi Site
    https://echochildren.org/
    https://pubmed.ncbi.nlm.nih.gov/36963379/, https://pubmed.ncbi.nlm.nih.gov/29567045, https://pubmed.ncbi.nlm.nih.gov/31850800, https://pubmed.ncbi.nlm.nih.gov/32066883, https://pubmed.ncbi.nlm.nih.gov/33418560, https://pubmed.ncbi.nlm.nih.gov/33591054, https://pubmed.ncbi.nlm.nih.gov/33999100, https://pubmed.ncbi.nlm.nih.gov/34131290, https://pubmed.ncbi.nlm.nih.gov/34467678, https://pubmed.ncbi.nlm.nih.gov/34494118
    Neurodevelopment, Asthma, Sleep, Autism, Obesity, Prenatal Morbidity, Diet, Smoking, Chemicals, Psychosocial Determinants
    No
    No
    None
    Certain study data is not available in DASH
    The data in this release are based on an October 31, 2023 data lock. It excludes geospatial data, genetic and epigenetic data and all data from the Navajo Birth Cohort. Additionally, it excludes custom data provided by cohorts not part of the study's protocol.
    These data are not currently available to the public.
    ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html), Behavior rating inventory of executive function (BRIEF) (https://www.parinc.com/Products/Pkey/23), Behavior rating inventory of executive function 2 (BRIEF 2) (https://www.parinc.com/Products/Pkey/24), Behavior Rating Inventory of Executive Function-Preschool (BRIEF-P) (https://www.parinc.com/Products/Pkey/26)
    ICD-9, ICD-10, RxNorm
    401
    Document

    12-month Stressor Checklist DCF (Spanish)

    Environmental influences on Child Health Outcomes (ECHO)-wide Cohort - 3rd Release (ECHO Cohorts v3)
    Release 3Latest
    12-month Stressor Checklist Data Collection Form (Spanish)
    Data Collection Instruments
    Child Health
    Other Types of Clinical Research
    Multi Site
    https://echochildren.org/
    https://pubmed.ncbi.nlm.nih.gov/36963379/, https://pubmed.ncbi.nlm.nih.gov/29567045, https://pubmed.ncbi.nlm.nih.gov/31850800, https://pubmed.ncbi.nlm.nih.gov/32066883, https://pubmed.ncbi.nlm.nih.gov/33418560, https://pubmed.ncbi.nlm.nih.gov/33591054, https://pubmed.ncbi.nlm.nih.gov/33999100, https://pubmed.ncbi.nlm.nih.gov/34131290, https://pubmed.ncbi.nlm.nih.gov/34467678, https://pubmed.ncbi.nlm.nih.gov/34494118
    Neurodevelopment, Asthma, Sleep, Autism, Obesity, Prenatal Morbidity, Diet, Smoking, Chemicals, Psychosocial Determinants
    No
    No
    None
    Certain study data is not available in DASH
    The data in this release are based on an October 31, 2023 data lock. It excludes geospatial data, genetic and epigenetic data and all data from the Navajo Birth Cohort. Additionally, it excludes custom data provided by cohorts not part of the study's protocol.
    These data are not currently available to the public.
    ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html), Behavior rating inventory of executive function (BRIEF) (https://www.parinc.com/Products/Pkey/23), Behavior rating inventory of executive function 2 (BRIEF 2) (https://www.parinc.com/Products/Pkey/24), Behavior Rating Inventory of Executive Function-Preschool (BRIEF-P) (https://www.parinc.com/Products/Pkey/26)
    ICD-9, ICD-10, RxNorm
    401
    Document

    12-month Stressor Checklist DCF (Spanish)

    Environmental influences on Child Health Outcomes (ECHO)-wide Cohort (ECHO Cohorts)
    Release 1Not Latest
    12-month Stressor Checklist Data Collection Form (Spanish)
    Data Collection Instruments
    Child Health, Breastfeeding and Breast Milk, Autism Spectrum Disorder (ASD), Attention Deficit/Hyperactivity Disorder, Early Labor and Birth, Early Puberty, Gestational Diabetes, Infant Care and Infant Health, Obesity and Overweight, Preeclampsia and Eclampsia, Pregnancy, Preterm Labor and Birth, Sleep
    Other Types of Clinical Research
    Multi Site
    https://echochildren.org/
    https://pubmed.ncbi.nlm.nih.gov/34494118, https://pubmed.ncbi.nlm.nih.gov/34561347, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5996976/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6957289/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7183426/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7794036/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8012230/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8129904/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8204620/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9088705/
    Neurodevelopment, Asthma, Sleep, Autism, Obesity, Prenatal Morbidity, Diet, Smoking, Chemicals, Psychosocial Determinants
    No
    No
    None
    Certain study data is not available in DASH
    The data in this release are based on an August 31, 2021 data lock. It excludes genetic and epigenetic data and all data from the Navajo Birth Cohort.
    Data sharing agreement with the Navajo Nation does not permit inclusion in a public use repository. Genomic data will be shared per NIH's Genomic Data Sharing (GDS) policy.
    ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html)
    ICD-9, ICD-10, RxNorm
    931
    Document

    12-month Stressor Checklist DCF (Spanish)

    Environmental influences on Child Health Outcomes (ECHO)-wide Cohort - 2nd Release (ECHO Cohort v2)
    Release 2Not Latest
    12-month Stressor Checklist Data Collection Form (Spanish)
    Data Collection Instruments
    Child Health
    Other Types of Clinical Research
    Multi Site
    https://echochildren.org/
    https://pubmed.ncbi.nlm.nih.gov/36963379/, https://pubmed.ncbi.nlm.nih.gov/29567045, https://pubmed.ncbi.nlm.nih.gov/31850800, https://pubmed.ncbi.nlm.nih.gov/32066883, https://pubmed.ncbi.nlm.nih.gov/33418560, https://pubmed.ncbi.nlm.nih.gov/33591054, https://pubmed.ncbi.nlm.nih.gov/33999100, https://pubmed.ncbi.nlm.nih.gov/34131290, https://pubmed.ncbi.nlm.nih.gov/34467678, https://pubmed.ncbi.nlm.nih.gov/34494118
    neurodevelopment, asthma, sleep, autism, obesity, prenatal morbidity, diet, smoking, chemicals, psychosocial determinants
    No
    No
    None
    Certain study data is not available in DASH
    The data in this release are based on an August 31, 2022 data lock. It excludes genetic and epigenetic data and all data from the Navajo Birth Cohort. Additionally, it excludes custom data provided by cohorts not part of the study's protocol.
    These data are not currently available to the public.
    Available
    ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html), Behavior rating inventory of executive function (BRIEF) (https://www.parinc.com/Products/Pkey/23), Behavior rating inventory of executive function 2 (BRIEF 2) (https://www.parinc.com/Products/Pkey/24), Behavior Rating Inventory of Executive Function-Preschool (BRIEF-P) (https://www.parinc.com/Products/Pkey/26)
    ICD-9, ICD-10, RxNorm
    385
    Document

    12-month Stressor Checklist Data Dictionary

    Environmental influences on Child Health Outcomes (ECHO)-wide Cohort (ECHO Cohorts)
    Release 1Not Latest
    12-month Stressor Checklist Data Dictionary
    Codebook/Variable Dictionary
    Child Health, Breastfeeding and Breast Milk, Autism Spectrum Disorder (ASD), Attention Deficit/Hyperactivity Disorder, Early Labor and Birth, Early Puberty, Gestational Diabetes, Infant Care and Infant Health, Obesity and Overweight, Preeclampsia and Eclampsia, Pregnancy, Preterm Labor and Birth, Sleep
    Other Types of Clinical Research
    Multi Site
    https://echochildren.org/
    https://pubmed.ncbi.nlm.nih.gov/34494118, https://pubmed.ncbi.nlm.nih.gov/34561347, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5996976/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6957289/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7183426/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7794036/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8012230/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8129904/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8204620/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9088705/
    Neurodevelopment, Asthma, Sleep, Autism, Obesity, Prenatal Morbidity, Diet, Smoking, Chemicals, Psychosocial Determinants
    No
    No
    None
    Certain study data is not available in DASH
    The data in this release are based on an August 31, 2021 data lock. It excludes genetic and epigenetic data and all data from the Navajo Birth Cohort.
    Data sharing agreement with the Navajo Nation does not permit inclusion in a public use repository. Genomic data will be shared per NIH's Genomic Data Sharing (GDS) policy.
    ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html)
    ICD-9, ICD-10, RxNorm
    931
    Document

    13 Month Contact - Relationship

    Parent Provider Alliance (PPA)
    This file contains information regarding the person completing the surveys at 13 months and their relationship to the patient.
    Codebook/Variable Dictionary
    Pediatric Injury, Child Health, Infant Care and Infant Health, Infant Mortality
    Other Types of Clinical Research
    Multi Site
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8016694/
    Bereavement, Child, Parent, Pediatric Intensive Care Unit, Physician, Race, Therapeutic Alliance
    No
    All data for the study is available in DASH
    5
    Document

    13 Month Surveys

    Parent Provider Alliance (PPA)
    This file contains the results of the 13 month surveys.
    Codebook/Variable Dictionary
    Pediatric Injury, Child Health, Infant Care and Infant Health, Infant Mortality
    Other Types of Clinical Research
    Multi Site
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8016694/
    Bereavement, Child, Parent, Pediatric Intensive Care Unit, Physician, Race, Therapeutic Alliance
    No
    All data for the study is available in DASH
    5
    Document

    14-CH-0106 Clinical Data Codebook

    Clinical Biomarkers in Alpha-Mannosidosis (14-CH-0106)
    14-CH-0106 Clinical Data Codebook
    Codebook/Variable Dictionary
    Neuroscience, Child Health
    Other Types of Clinical Research
    Single Site
    Alpha-mannosidosis (AMD), Lysosomal storage disorder, Lysosomal alpha-mannosidase
    No
    No
    None
    All data for the study is available in DASH
    1
    Document

    14-CH-0106 Data Collection Instrument Placeholder

    Clinical Biomarkers in Alpha-Mannosidosis (14-CH-0106)
    14-CH-0106 Data Collection Instrument Placeholder
    Data Collection Instruments
    Neuroscience, Child Health
    Other Types of Clinical Research
    Single Site
    Alpha-mannosidosis (AMD), Lysosomal storage disorder, Lysosomal alpha-mannosidase
    No
    No
    None
    All data for the study is available in DASH
    1
    Document

    14-CH-0106 De-identification Method

    Clinical Biomarkers in Alpha-Mannosidosis (14-CH-0106)
    14-CH-0106 De-identification Method
    De-Identification Methodology
    Neuroscience, Child Health
    Other Types of Clinical Research
    Single Site
    Alpha-mannosidosis (AMD), Lysosomal storage disorder, Lysosomal alpha-mannosidase
    No
    No
    None
    All data for the study is available in DASH
    1
    Document

    14-CH-0106 Study Protocol

    Clinical Biomarkers in Alpha-Mannosidosis (14-CH-0106)
    14-CH-0106 Study Protocol
    Study Protocol
    Neuroscience, Child Health
    Other Types of Clinical Research
    Single Site
    Alpha-mannosidosis (AMD), Lysosomal storage disorder, Lysosomal alpha-mannosidase
    No
    No
    None
    All data for the study is available in DASH
    1
    Document

    1424_STAFF

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Staff Qualitative Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15201730_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15201730_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15202300_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15202300_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15205769_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15209074_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15209074_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15212621_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15212621_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15213345_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15213345_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15213385_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15217093_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15218928_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15218928_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15219809_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15223208_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15223208_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15225365_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15225365_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15227209_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15227350_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15227350_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15234163_WEEK12

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 12 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
    Document

    15234163_WEEK48

    Triggered Escalating Real-time Adherence Intervention to Promote Rapid HIV Viral Suppression among Youth Living with HIV Failing Antiretroviral Therapy: The TERA Study (ATN 152)
    Week 48 Participant Interview
    Qualitative Interview
    HIV/AIDS, Child Health
    Clinical Trial - NIH defined
    Multi Site
    https://www.atnconnect.org/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6441855/
    Adolescents, Medication Adherence, Telemedicine, Telehealth, Electronic Dose Monitoring, Viral Suppression
    No
    No
    None
    All data for the study is available in DASH
    30
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