Attention: This repository is under review for potential modification in compliance with Administration directives.

Important Notice:
NICHD is in the process of migrating DASH to a new platform. DASH is providing support for new study submissions during the migration. Email DASHCurator@mail.nih.gov with study submission inquiries.

Please contact SupportDASH@mail.nih.gov with all other inquiries. We appreciate your patience during this transition.

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13675 Total Results

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Infant Birth Assessment

Study Name: Prospective Cohort Study of HIV and Zika in Infants and Pregnancy (HIV ZIP)

Dataset Description: Infant Birth Assessment Dataset

Dataset Format: sas7bdat

Topic: Infant Care and Infant Health, Birth Defects, HIV/AIDS, Zika, Newborn Screening, Pregnancy, Child Health, Women's Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Keywords: Zika Virus, Pregnant Women, Infant neurodevelopment

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: All data for the study is available in DASH

Proprietary Data Collection Instrument: Bayley Scales of Infant Development, 3rd Edition (BSID-III (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Bayley-Scales-of-Infant-and-Toddler-Development-%7C-Third-Edition/p/100000123.html), Ages & Stages Questionnaire, 3rd Edition (ASQ-3) (https://agesandstages.com/products-pricing/asq3/)

Licensed Coding Standard: MedDRA version 20.0

Variable-Level Information: Available

Unique Datasets: 48

Infant HIV status

Study Name: A Phase IV Randomized Trial to Evaluate the Virologic Response and Pharmacokinetics of Two Different Triple Antiretroviral Regimens in HIV Infected Women Initiated Between 28 and 36 Weeks of Pregnancy for the Prevention of Mother-to-Child Transmission (P1081)

Dataset Description: Infant HIV-infection status dataset

Dataset Format: csv

Topic: Child Health, Pregnancy, Women's Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Publication URLs: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7323582/

Keywords: Efavirenz, Raltegravir, HIV, Antiretroviral Therapy, Pregnant women, Lamivudine/Zidovudine, Pregnancy

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: Data not used in the analyses of the primary objectives.

Information for obtaining study data not available in DASH: Data are not available for secondary uses.

Licensed Coding Standard: MedDRA

Unique Datasets: 24

000241-CH DASH CRIS Labs Dataset

Study Name: Phase II Trial of Liraglutide (Saxenda(R), Novo Nordisk) in Adolescents with Obesity After Sleeve Gastrectomy: A Pilot Open-Label Study (Liraglutide in Teens Post-SG)

Dataset Description: CRIS Labs Data for DASH

Dataset Format: csv

Topic: Obesity and Overweight, Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Study Website URL: https://clinicalstudies.info.nih.gov/protocoldetails.aspx?id=000241-CH

Publication URLs: https://www.ncbi.nlm.nih.gov/pubmed/39103247

Keywords: Bariatric Surgery, Pharmacotherapy, BMI, GLP1, Weight Loss

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: Study subjects gave explicit permission to allow data sharing with other researchers. Data from those who did not consent to sharing cannot be made available.

Study data availability in DASH: All data for the study is available in DASH

Unique Datasets: 32

12-month Stressor Checklist

Study Name: Environmental influences on Child Health Outcomes (ECHO)-wide Cohort - 2nd Release (ECHO Cohort v2)

Study Release: Release 2Not Latest

Dataset Description: 12-month Stressor Checklist

Dataset Format: csv

Topic: Child Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://echochildren.org/

Publication URLs: https://pubmed.ncbi.nlm.nih.gov/36963379/, https://pubmed.ncbi.nlm.nih.gov/29567045, https://pubmed.ncbi.nlm.nih.gov/31850800, https://pubmed.ncbi.nlm.nih.gov/32066883, https://pubmed.ncbi.nlm.nih.gov/33418560, https://pubmed.ncbi.nlm.nih.gov/33591054, https://pubmed.ncbi.nlm.nih.gov/33999100, https://pubmed.ncbi.nlm.nih.gov/34131290, https://pubmed.ncbi.nlm.nih.gov/34467678, https://pubmed.ncbi.nlm.nih.gov/34494118

Keywords: neurodevelopment, asthma, sleep, autism, obesity, prenatal morbidity, diet, smoking, chemicals, psychosocial determinants

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The data in this release are based on an August 31, 2022 data lock. It excludes genetic and epigenetic data and all data from the Navajo Birth Cohort. Additionally, it excludes custom data provided by cohorts not part of the study's protocol.

Information for obtaining study data not available in DASH: These data are not currently available to the public.

Proprietary Data Collection Instrument: ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html), Behavior rating inventory of executive function (BRIEF) (https://www.parinc.com/Products/Pkey/23), Behavior rating inventory of executive function 2 (BRIEF 2) (https://www.parinc.com/Products/Pkey/24), Behavior Rating Inventory of Executive Function-Preschool (BRIEF-P) (https://www.parinc.com/Products/Pkey/26)

Licensed Coding Standard: ICD-9, ICD-10, RxNorm

Variable-Level Information: Available

Unique Datasets: 385

12-month Stressor Checklist

Study Name: Environmental influences on Child Health Outcomes (ECHO)-wide Cohort (ECHO Cohorts)

Study Release: Release 1Not Latest

Dataset Description: 12-month Stressor Checklist

Dataset Format: csv

Topic: Child Health, Breastfeeding and Breast Milk, Autism Spectrum Disorder (ASD), Attention Deficit/Hyperactivity Disorder, Early Labor and Birth, Early Puberty, Gestational Diabetes, Infant Care and Infant Health, Obesity and Overweight, Preeclampsia and Eclampsia, Pregnancy, Preterm Labor and Birth, Sleep

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://echochildren.org/

Publication URLs: https://pubmed.ncbi.nlm.nih.gov/34494118, https://pubmed.ncbi.nlm.nih.gov/34561347, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5996976/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6957289/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7183426/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7794036/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8012230/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8129904/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8204620/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9088705/

Keywords: Neurodevelopment, Asthma, Sleep, Autism, Obesity, Prenatal Morbidity, Diet, Smoking, Chemicals, Psychosocial Determinants

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The data in this release are based on an August 31, 2021 data lock. It excludes genetic and epigenetic data and all data from the Navajo Birth Cohort.

Information for obtaining study data not available in DASH: Data sharing agreement with the Navajo Nation does not permit inclusion in a public use repository. Genomic data will be shared per NIH's Genomic Data Sharing (GDS) policy.

Proprietary Data Collection Instrument: ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html)

Licensed Coding Standard: ICD-9, ICD-10, RxNorm

Unique Datasets: 931

12-month Stressor Checklist

Study Name: Environmental influences on Child Health Outcomes (ECHO)-wide Cohort - 3rd Release (ECHO Cohorts v3)

Study Release: Release 3Latest

Dataset Description: 12-month Stressor Checklist

Dataset Format: csv

Topic: Child Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://echochildren.org/

Publication URLs: https://pubmed.ncbi.nlm.nih.gov/36963379/, https://pubmed.ncbi.nlm.nih.gov/29567045, https://pubmed.ncbi.nlm.nih.gov/31850800, https://pubmed.ncbi.nlm.nih.gov/32066883, https://pubmed.ncbi.nlm.nih.gov/33418560, https://pubmed.ncbi.nlm.nih.gov/33591054, https://pubmed.ncbi.nlm.nih.gov/33999100, https://pubmed.ncbi.nlm.nih.gov/34131290, https://pubmed.ncbi.nlm.nih.gov/34467678, https://pubmed.ncbi.nlm.nih.gov/34494118

Keywords: Neurodevelopment, Asthma, Sleep, Autism, Obesity, Prenatal Morbidity, Diet, Smoking, Chemicals, Psychosocial Determinants

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The data in this release are based on an October 31, 2023 data lock. It excludes geospatial data, genetic and epigenetic data and all data from the Navajo Birth Cohort. Additionally, it excludes custom data provided by cohorts not part of the study's protocol.

Information for obtaining study data not available in DASH: These data are not currently available to the public.

Proprietary Data Collection Instrument: ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html), Behavior rating inventory of executive function (BRIEF) (https://www.parinc.com/Products/Pkey/23), Behavior rating inventory of executive function 2 (BRIEF 2) (https://www.parinc.com/Products/Pkey/24), Behavior Rating Inventory of Executive Function-Preschool (BRIEF-P) (https://www.parinc.com/Products/Pkey/26)

Licensed Coding Standard: ICD-9, ICD-10, RxNorm

Variable-Level Information: Available

Unique Datasets: 401

13 Month Contact - Relationship

Study Name: Parent Provider Alliance (PPA)

Dataset Description: This file contains information regarding the person completing the surveys at 13 months and their relationship to the patient.

Dataset Format: sas7bdat

13 Month Contact - Relationship

Study Name: Parent Provider Alliance (PPA)

Dataset Description: This file contains information regarding the person completing the surveys at 13 months and their relationship to the patient.

Dataset Format: csv

13 Month Surveys

Study Name: Parent Provider Alliance (PPA)

Dataset Description: This file contains the results of the 13 month surveys.

Dataset Format: csv

13 Month Surveys

Study Name: Parent Provider Alliance (PPA)

Dataset Description: This file contains the results of the 13 month surveys.

Dataset Format: sas7bdat

14-CH-0106 Clinical Data

Study Name: Clinical Biomarkers in Alpha-Mannosidosis (14-CH-0106)

Dataset Description: 14-CH-0106 Clinical Data

Dataset Format: xlsx

18-22 Month NDI Follow-up

Study Name: Fluconazole Prophylaxis for the Prevention of Candidiasis in Infants <750 Grams Birth Weight (FlucProphylaxis)

Dataset Description: 18-22 Month NDI Follow-up Dataset

Dataset Format: csv

18-22 Month Visit

Study Name: Fluconazole Prophylaxis for the Prevention of Candidiasis in Infants <750 Grams Birth Weight (FlucProphylaxis)

Dataset Description: 18-22 Month Visit Dataset

Dataset Format: csv

24 Month Baby Dataset Program

Study Name: Preconception Maternal Nutrition Trial Women First (Enrollment to 24 Months After Birth) (Women First)

Dataset Description: WF Baby Data in the SAS software format

Dataset Format: sas7bdat

Topic: Pregnancy, Preconception Care and Prenatal Care, Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Study Website URL: gn.rti.org

Publication URLs: https://foodandnutritionresearch.net/index.php/fnr/article/view/1182/4461, https://doi.org/10.1093/ajcn/nqy228, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7855785/, https://dx.doi.org/10.1186/1471-2393-14-111, https://dx.doi.org/10.1186/s12889-017-4509-z

Keywords: Preconceptional Maternal Nutrition, Low Birth Weight, Infant Growth, Maternal Nutrition Supplement, Stunting, Multi-micronutrient Fortified Lipid-based Supplement

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The dietary raw data and laboratory data.

Information for obtaining study data not available in DASH: Only constructed variables used for publication analyses from enrollment to the 2-year follow-up, including neurodevelopmental testing data are available. The dietary data are available at FAO/WHO GIFT (Global Individual Food Consumption Data Tool) https://www.fao.org/gift-individual-food-consumption/en. The laboratory data can be requested through the PI (Krebs).

Unique Datasets: 8

24 Month Baby Dataset Program

Study Name: Preconception Maternal Nutrition Trial Women First (Enrollment to 24 Months After Birth) (Women First)

Dataset Description: WF Baby Data in the CSV software format

Dataset Format: csv

Topic: Pregnancy, Preconception Care and Prenatal Care, Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Study Website URL: gn.rti.org

Publication URLs: https://foodandnutritionresearch.net/index.php/fnr/article/view/1182/4461, https://doi.org/10.1093/ajcn/nqy228, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7855785/, https://dx.doi.org/10.1186/1471-2393-14-111, https://dx.doi.org/10.1186/s12889-017-4509-z

Keywords: Preconceptional Maternal Nutrition, Low Birth Weight, Infant Growth, Maternal Nutrition Supplement, Stunting, Multi-micronutrient Fortified Lipid-based Supplement

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The dietary raw data and laboratory data.

Information for obtaining study data not available in DASH: Only constructed variables used for publication analyses from enrollment to the 2-year follow-up, including neurodevelopmental testing data are available. The dietary data are available at FAO/WHO GIFT (Global Individual Food Consumption Data Tool) https://www.fao.org/gift-individual-food-consumption/en. The laboratory data can be requested through the PI (Krebs).

Unique Datasets: 8

24 Month Mother Dataset Program

Study Name: Preconception Maternal Nutrition Trial Women First (Enrollment to 24 Months After Birth) (Women First)

Dataset Description: WF Mother Data in the CSV software format

Dataset Format: csv

Topic: Pregnancy, Preconception Care and Prenatal Care, Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Study Website URL: gn.rti.org

Publication URLs: https://foodandnutritionresearch.net/index.php/fnr/article/view/1182/4461, https://doi.org/10.1093/ajcn/nqy228, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7855785/, https://dx.doi.org/10.1186/1471-2393-14-111, https://dx.doi.org/10.1186/s12889-017-4509-z

Keywords: Preconceptional Maternal Nutrition, Low Birth Weight, Infant Growth, Maternal Nutrition Supplement, Stunting, Multi-micronutrient Fortified Lipid-based Supplement

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The dietary raw data and laboratory data.

Information for obtaining study data not available in DASH: Only constructed variables used for publication analyses from enrollment to the 2-year follow-up, including neurodevelopmental testing data are available. The dietary data are available at FAO/WHO GIFT (Global Individual Food Consumption Data Tool) https://www.fao.org/gift-individual-food-consumption/en. The laboratory data can be requested through the PI (Krebs).

Unique Datasets: 8

24 Month Mother Dataset Program

Study Name: Preconception Maternal Nutrition Trial Women First (Enrollment to 24 Months After Birth) (Women First)

Dataset Description: WF Mother Data in the SAS software format

Dataset Format: sas7bdat

Topic: Pregnancy, Preconception Care and Prenatal Care, Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Study Website URL: gn.rti.org

Publication URLs: https://foodandnutritionresearch.net/index.php/fnr/article/view/1182/4461, https://doi.org/10.1093/ajcn/nqy228, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7855785/, https://dx.doi.org/10.1186/1471-2393-14-111, https://dx.doi.org/10.1186/s12889-017-4509-z

Keywords: Preconceptional Maternal Nutrition, Low Birth Weight, Infant Growth, Maternal Nutrition Supplement, Stunting, Multi-micronutrient Fortified Lipid-based Supplement

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The dietary raw data and laboratory data.

Information for obtaining study data not available in DASH: Only constructed variables used for publication analyses from enrollment to the 2-year follow-up, including neurodevelopmental testing data are available. The dietary data are available at FAO/WHO GIFT (Global Individual Food Consumption Data Tool) https://www.fao.org/gift-individual-food-consumption/en. The laboratory data can be requested through the PI (Krebs).

Unique Datasets: 8

24 hour diet recall

Study Name: The BioCycle Study (BioCycle)

Dataset Description: 24 hour diet recall

Dataset Format: csv

Topic: Women's Health

Study Type: Other Types of Clinical Research

Study Site Type: Single Site

Study Website URL: https://www.nichd.nih.gov/about/org/diphr/eb/research/Pages/biocycle.aspx

Publication URLs: List of all BioCycle publications can be found on the study page of the NICHD website, including design paper and analysis of the primary hypothesis.

Keywords: Oxidative Stress , Menstrual Cycle, Hormone

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: Lifestyle, nutritional and other biomarker data are not being submitted.

Information for obtaining study data not available in DASH: Additional data are not available.

Variable-Level Information: Available

Unique Datasets: 59

24 hour diet recall

Study Name: The BioCycle Study (BioCycle)

Dataset Description: 24 hour diet recall

Dataset Format: sas7bdat

Topic: Women's Health

Study Type: Other Types of Clinical Research

Study Site Type: Single Site

Study Website URL: https://www.nichd.nih.gov/about/org/diphr/eb/research/Pages/biocycle.aspx

Publication URLs: List of all BioCycle publications can be found on the study page of the NICHD website, including design paper and analysis of the primary hypothesis.

Keywords: Oxidative Stress , Menstrual Cycle, Hormone

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: Lifestyle, nutritional and other biomarker data are not being submitted.

Information for obtaining study data not available in DASH: Additional data are not available.

Variable-Level Information: Available

Unique Datasets: 59

3 month survey

Study Name: Technology-Based Stepped Care to Stem Transgender Adolescent (TechStep) Risk Transmission (ATN 160)

Dataset Description: Data from the 3 month survey

Dataset Format: csv

Topic: HIV/AIDS, Sexually Transmitted Diseases (STDs), Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Publication URLs: https://www.researchprotocols.org/2020/8/e18326/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7986973/

Keywords: HIV, AIDS, Text Messaging, mHealth, PrEP

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: Data not submitted include screener data and formative data collection (transcripts from focus groups to inform intervention adaptation).

Information for obtaining study data not available in DASH: Data are available on reasonable request from the principal investigator.

Unique Datasets: 20

3 month survey

Study Name: Technology-Based Stepped Care to Stem Transgender Adolescent (TechStep) Risk Transmission (ATN 160)

Dataset Description: Data from the 3 month survey

Dataset Format: sas7bdat

Topic: HIV/AIDS, Sexually Transmitted Diseases (STDs), Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Publication URLs: https://www.researchprotocols.org/2020/8/e18326/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7986973/

Keywords: HIV, AIDS, Text Messaging, mHealth, PrEP

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: Data not submitted include screener data and formative data collection (transcripts from focus groups to inform intervention adaptation).

Information for obtaining study data not available in DASH: Data are available on reasonable request from the principal investigator.

Unique Datasets: 20

6 Month Contact - Relationship

Study Name: Parent Provider Alliance (PPA)

Dataset Description: This file contains information regarding the person completing the surveys at 6 months and their relationship to the patient.

Dataset Format: sas7bdat

6 Month Contact - Relationship

Study Name: Parent Provider Alliance (PPA)

Dataset Description: This file contains information regarding the person completing the surveys at 6 months and their relationship to the patient.

Dataset Format: csv

6 month Surveys

Study Name: Parent Provider Alliance (PPA)

Dataset Description: This file contains the results of the 6 month surveys.

Dataset Format: csv

6 month Surveys

Study Name: Parent Provider Alliance (PPA)

Dataset Description: This file contains the results of the 6 month surveys.

Dataset Format: sas7bdat

6 month survey

Study Name: Technology-Based Stepped Care to Stem Transgender Adolescent (TechStep) Risk Transmission (ATN 160)

Dataset Description: Data from the 6 month survey

Dataset Format: csv

Topic: HIV/AIDS, Sexually Transmitted Diseases (STDs), Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Publication URLs: https://www.researchprotocols.org/2020/8/e18326/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7986973/

Keywords: HIV, AIDS, Text Messaging, mHealth, PrEP

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: Data not submitted include screener data and formative data collection (transcripts from focus groups to inform intervention adaptation).

Information for obtaining study data not available in DASH: Data are available on reasonable request from the principal investigator.

Unique Datasets: 20

6 month survey

Study Name: Technology-Based Stepped Care to Stem Transgender Adolescent (TechStep) Risk Transmission (ATN 160)

Dataset Description: Data from the 6 month survey

Dataset Format: sas7bdat

Topic: HIV/AIDS, Sexually Transmitted Diseases (STDs), Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Publication URLs: https://www.researchprotocols.org/2020/8/e18326/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7986973/

Keywords: HIV, AIDS, Text Messaging, mHealth, PrEP

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: Data not submitted include screener data and formative data collection (transcripts from focus groups to inform intervention adaptation).

Information for obtaining study data not available in DASH: Data are available on reasonable request from the principal investigator.

Unique Datasets: 20

9 month survey

Study Name: Technology-Based Stepped Care to Stem Transgender Adolescent (TechStep) Risk Transmission (ATN 160)

Dataset Description: Data from the 9 month survey

Dataset Format: csv

Topic: HIV/AIDS, Sexually Transmitted Diseases (STDs), Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Publication URLs: https://www.researchprotocols.org/2020/8/e18326/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7986973/

Keywords: HIV, AIDS, Text Messaging, mHealth, PrEP

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: Data not submitted include screener data and formative data collection (transcripts from focus groups to inform intervention adaptation).

Information for obtaining study data not available in DASH: Data are available on reasonable request from the principal investigator.

Unique Datasets: 20

9 month survey

Study Name: Technology-Based Stepped Care to Stem Transgender Adolescent (TechStep) Risk Transmission (ATN 160)

Dataset Description: Data from the 9 month survey

Dataset Format: sas7bdat

Topic: HIV/AIDS, Sexually Transmitted Diseases (STDs), Child Health

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Publication URLs: https://www.researchprotocols.org/2020/8/e18326/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7986973/

Keywords: HIV, AIDS, Text Messaging, mHealth, PrEP

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: Data not submitted include screener data and formative data collection (transcripts from focus groups to inform intervention adaptation).

Information for obtaining study data not available in DASH: Data are available on reasonable request from the principal investigator.

Unique Datasets: 20

90-CH-0149 Clinical Data

Study Name: Early Copper Histidine Therapy in Menkes Disease (90-CH-0149)

Dataset Description: 90-CH-0149 Clinical Data

Dataset Format: xlsx

A Developmental NEuroPSYchological Assessment II (NEPSY II)

Study Name: Environmental influences on Child Health Outcomes (ECHO)-wide Cohort - 2nd Release (ECHO Cohort v2)

Study Release: Release 2Not Latest

Dataset Description: A Developmental NEuroPSYchological Assessment II (NEPSY II)

Dataset Format: csv

Topic: Child Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://echochildren.org/

Publication URLs: https://pubmed.ncbi.nlm.nih.gov/36963379/, https://pubmed.ncbi.nlm.nih.gov/29567045, https://pubmed.ncbi.nlm.nih.gov/31850800, https://pubmed.ncbi.nlm.nih.gov/32066883, https://pubmed.ncbi.nlm.nih.gov/33418560, https://pubmed.ncbi.nlm.nih.gov/33591054, https://pubmed.ncbi.nlm.nih.gov/33999100, https://pubmed.ncbi.nlm.nih.gov/34131290, https://pubmed.ncbi.nlm.nih.gov/34467678, https://pubmed.ncbi.nlm.nih.gov/34494118

Keywords: neurodevelopment, asthma, sleep, autism, obesity, prenatal morbidity, diet, smoking, chemicals, psychosocial determinants

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The data in this release are based on an August 31, 2022 data lock. It excludes genetic and epigenetic data and all data from the Navajo Birth Cohort. Additionally, it excludes custom data provided by cohorts not part of the study's protocol.

Information for obtaining study data not available in DASH: These data are not currently available to the public.

Proprietary Data Collection Instrument: ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html), Behavior rating inventory of executive function (BRIEF) (https://www.parinc.com/Products/Pkey/23), Behavior rating inventory of executive function 2 (BRIEF 2) (https://www.parinc.com/Products/Pkey/24), Behavior Rating Inventory of Executive Function-Preschool (BRIEF-P) (https://www.parinc.com/Products/Pkey/26)

Licensed Coding Standard: ICD-9, ICD-10, RxNorm

Variable-Level Information: Available

Unique Datasets: 385

A Developmental NEuroPSYchological Assessment II (NEPSY II)

Study Name: Environmental influences on Child Health Outcomes (ECHO)-wide Cohort - 3rd Release (ECHO Cohorts v3)

Study Release: Release 3Latest

Dataset Description: A Developmental NEuroPSYchological Assessment II (NEPSY II)

Dataset Format: csv

Topic: Child Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://echochildren.org/

Publication URLs: https://pubmed.ncbi.nlm.nih.gov/36963379/, https://pubmed.ncbi.nlm.nih.gov/29567045, https://pubmed.ncbi.nlm.nih.gov/31850800, https://pubmed.ncbi.nlm.nih.gov/32066883, https://pubmed.ncbi.nlm.nih.gov/33418560, https://pubmed.ncbi.nlm.nih.gov/33591054, https://pubmed.ncbi.nlm.nih.gov/33999100, https://pubmed.ncbi.nlm.nih.gov/34131290, https://pubmed.ncbi.nlm.nih.gov/34467678, https://pubmed.ncbi.nlm.nih.gov/34494118

Keywords: Neurodevelopment, Asthma, Sleep, Autism, Obesity, Prenatal Morbidity, Diet, Smoking, Chemicals, Psychosocial Determinants

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The data in this release are based on an October 31, 2023 data lock. It excludes geospatial data, genetic and epigenetic data and all data from the Navajo Birth Cohort. Additionally, it excludes custom data provided by cohorts not part of the study's protocol.

Information for obtaining study data not available in DASH: These data are not currently available to the public.

Proprietary Data Collection Instrument: ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html), Behavior rating inventory of executive function (BRIEF) (https://www.parinc.com/Products/Pkey/23), Behavior rating inventory of executive function 2 (BRIEF 2) (https://www.parinc.com/Products/Pkey/24), Behavior Rating Inventory of Executive Function-Preschool (BRIEF-P) (https://www.parinc.com/Products/Pkey/26)

Licensed Coding Standard: ICD-9, ICD-10, RxNorm

Variable-Level Information: Available

Unique Datasets: 401

A Developmental NEuroPSYchological Assessment II (NEPSY II)

Study Name: Environmental influences on Child Health Outcomes (ECHO)-wide Cohort (ECHO Cohorts)

Study Release: Release 1Not Latest

Dataset Description: A Developmental NEuroPSYchological Assessment II (NEPSY II)

Dataset Format: csv

Topic: Child Health, Breastfeeding and Breast Milk, Autism Spectrum Disorder (ASD), Attention Deficit/Hyperactivity Disorder, Early Labor and Birth, Early Puberty, Gestational Diabetes, Infant Care and Infant Health, Obesity and Overweight, Preeclampsia and Eclampsia, Pregnancy, Preterm Labor and Birth, Sleep

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://echochildren.org/

Publication URLs: https://pubmed.ncbi.nlm.nih.gov/34494118, https://pubmed.ncbi.nlm.nih.gov/34561347, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5996976/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6957289/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7183426/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7794036/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8012230/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8129904/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8204620/, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9088705/

Keywords: Neurodevelopment, Asthma, Sleep, Autism, Obesity, Prenatal Morbidity, Diet, Smoking, Chemicals, Psychosocial Determinants

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: The data in this release are based on an August 31, 2021 data lock. It excludes genetic and epigenetic data and all data from the Navajo Birth Cohort.

Information for obtaining study data not available in DASH: Data sharing agreement with the Navajo Nation does not permit inclusion in a public use repository. Genomic data will be shared per NIH's Genomic Data Sharing (GDS) policy.

Proprietary Data Collection Instrument: ECHO Eating Habits Questionnaire for Ages 2-7 (https://www.nutritionquest.com/), ECHO Eating Habits Questionnaire for Ages 8-17 (https://www.nutritionquest.com/), Block Screener Questionnaire for Ages 2-17 (https://www.nutritionquest.com/), Ages & Stages Questionnaire - 2 month (https://agesandstages.com/), Ages & Stages Questionnaire - 4 month (https://agesandstages.com/), Ages & Stages Questionnaire - 6 month (https://agesandstages.com/), Ages & Stages Questionnaire - 8 month (https://agesandstages.com/), Ages & Stages Questionnaire - 9 month (https://agesandstages.com/), Ages & Stages Questionnaire - 10 month (https://agesandstages.com/), Ages & Stages Questionnaire - 12 month (https://agesandstages.com/), Ages & Stages Questionnaire - 14 month (https://agesandstages.com/), Ages & Stages Questionnaire - 16 month (https://agesandstages.com/), Ages & Stages Questionnaire - 18 month (https://agesandstages.com/), Ages & Stages Questionnaire - 20 month (https://agesandstages.com/), Ages & Stages Questionnaire - 22 month (https://agesandstages.com/), Ages & Stages Questionnaire - 24 month (https://agesandstages.com/), Ages & Stages Questionnaire - 27 month (https://agesandstages.com/), Ages & Stages Questionnaire - 30 month (https://agesandstages.com/), Ages & Stages Questionnaire - 33 month (https://agesandstages.com/), Ages & Stages Questionnaire - 36 month (https://agesandstages.com/), Ages & Stages Questionnaire - 42 month (https://agesandstages.com/), Ages & Stages Questionnaire - 48 month (https://agesandstages.com/), Ages & Stages Questionnaire - 54 month (https://agesandstages.com/), Ages & Stages Questionnaire - 60 month (https://agesandstages.com/), Child Behavior Checklist (CBCL) for Ages 6 to1 8 (https://aseba.org/school-age/), Strengths and Difficulties Questionnaire (2 - 4yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (4 - 10yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11 - 17yo) (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (11- 17yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Strengths and Difficulties Questionnaire (18+yo) Self-Report (https://www.sdqinfo.org/py/sdqinfo/b3.py?language=Englishqz(USA)), Family Environment Scale - Cohesion (https://www.mindgarden.com/96-family-environment-scale), Family Environment Scale - Conflict (https://www.mindgarden.com/96-family-environment-scale), Achenbach System of Empirically Based Assessment Adult Self-Report (ASR) (https://aseba.org/adults/), Conflict Tactics Scale for Partner and Spouse (https://effectiveservices.force.com/s/measure/a007R00000v8QUGQA2/conflict-tactics-scales), Social Responsiveness Scale (SRS-2) - Adult (Relative/Other Report) (https://www.wpspublish.com/srs-2-social-responsiveness-scale-second-edition), Conners 3 Parent Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Conners 3 Self-Report Attention-Deficit/Hyperactivity Disorder (ADHD) Index (https://www.pearsonclinical.co.uk/store/ukassessments/en/Store/Professional-Assessments/Behavior/Comprehensive/Conners-3rd-Edition/p/P100009070.html), Vineland Adaptive Behavior Scales, Third Edition (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Behavior/Adaptive/Vineland-Adaptive-Behavior-Scales-%7C-Third-Edition/p/100001622.html)

Licensed Coding Standard: ICD-9, ICD-10, RxNorm

Unique Datasets: 931

A Randomized Trial of Prenatal versus Postnatal Repair of Myelomeningocele (MOMS, MOMS2) Dataset

Study Name: Management of Myelomeningocele Study - A Randomized Trial of Prenatal Versus Postnatal Repair of Myelomeningocele (MOMS, MOMS2)

Dataset Description: Combined dataset for MOMS and MOMS2

Dataset Format: csv

Topic: Birth Defects, Neural Tube Defects (NTDs), Spina Bifida

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Publication URLs: https://pubmed.ncbi.nlm.nih.gov/21306277/, https://pubmed.ncbi.nlm.nih.gov/26369371/, https://pubmed.ncbi.nlm.nih.gov/26416930/, https://pubmed.ncbi.nlm.nih.gov/27496687/, https://pubmed.ncbi.nlm.nih.gov/27263997/, https://pubmed.ncbi.nlm.nih.gov/29246577/, https://pubmed.ncbi.nlm.nih.gov/31075056/, https://pubmed.ncbi.nlm.nih.gov/30507586/, https://pubmed.ncbi.nlm.nih.gov/31613408/, https://pubmed.ncbi.nlm.nih.gov/31980545/

Keywords: Maternal fetal surgery, Fetal diagnosis, Myelomeningocele, Meningomyelocele, Spina bifida, Spina bifida cyctica, Spinal dysraphism, Nervous system malformations, Congenital abnormalities, Birth defects, Neutral tube defects, Open neutral tube defects, ONTD

Requires IRB approval for data access: Yes

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: A full description of deleted variables, as well as derived variables, is provided in the MOMS Release Reference Dictionary and the MOMS2 DASH Release Reference Dictionary. Essentially all data provided in DASH is similar in content as that used by internal investigators with some exceptions for de-identification (see DASH De-identification MOMS and MOMS2 document).

Information for obtaining study data not available in DASH: No additional data will be released.

Proprietary Data Collection Instrument: Child Behavior Checklist (https://aseba.org/), Behavior Rating Inventory of Executive Function (https://www.parinc.com/), Vineland Adaptive Behavior Scales, Second Edition (https://www.pearsonassessments.com/), Kaufman Brief Intelligence Test (KBIT-2) (https://www.pearsonassessments.com/), California Verbal Learning Test Children’s Version (https://www.pearsonassessments.com/), Berry Buktenicia Developmental Test of Visual-Motor Integration (https://www.pearsonassessments.com/), Children’s Memory Scale (https://www.pearsonassessments.com/), Woodcock Johnson – III Tests of Achievement form (https://riversideinsights.com/home), Bayley Scales of Infant and Toddler Development (https://www.pearsonassessments.com/), Peabody Developmental Motor Scales (https://www.pearsonassessments.com/), Carey Temperament Scales (https://etesting.center/), Beck Depression Inventory (https://etesting.center/), Parenting Stress Index (https://www.parinc.com/), WeeFIM (https://www.udsmr.org/products-pediatric-rehab), Preschool Language Scale (https://www.pearsonassessments.com/), Developmental NEuro PSYchological Assessment II (https://www.pearsonassessments.com/)

Variable-Level Information: Available

Unique Datasets: 1

A Randomized Trial of Prenatal versus Postnatal Repair of Myelomeningocele (MOMS, MOMS2) Dataset

Study Name: Management of Myelomeningocele Study - A Randomized Trial of Prenatal Versus Postnatal Repair of Myelomeningocele (MOMS, MOMS2)

Dataset Description: Combined dataset for MOMS and MOMS2

Dataset Format: sas7bdat

Topic: Birth Defects, Neural Tube Defects (NTDs), Spina Bifida

Study Type: Clinical Trial - NIH defined

Study Site Type: Multi Site

Publication URLs: https://pubmed.ncbi.nlm.nih.gov/21306277/, https://pubmed.ncbi.nlm.nih.gov/26369371/, https://pubmed.ncbi.nlm.nih.gov/26416930/, https://pubmed.ncbi.nlm.nih.gov/27496687/, https://pubmed.ncbi.nlm.nih.gov/27263997/, https://pubmed.ncbi.nlm.nih.gov/29246577/, https://pubmed.ncbi.nlm.nih.gov/31075056/, https://pubmed.ncbi.nlm.nih.gov/30507586/, https://pubmed.ncbi.nlm.nih.gov/31613408/, https://pubmed.ncbi.nlm.nih.gov/31980545/

Keywords: Maternal fetal surgery, Fetal diagnosis, Myelomeningocele, Meningomyelocele, Spina bifida, Spina bifida cyctica, Spinal dysraphism, Nervous system malformations, Congenital abnormalities, Birth defects, Neutral tube defects, Open neutral tube defects, ONTD

Requires IRB approval for data access: Yes

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: A full description of deleted variables, as well as derived variables, is provided in the MOMS Release Reference Dictionary and the MOMS2 DASH Release Reference Dictionary. Essentially all data provided in DASH is similar in content as that used by internal investigators with some exceptions for de-identification (see DASH De-identification MOMS and MOMS2 document).

Information for obtaining study data not available in DASH: No additional data will be released.

Proprietary Data Collection Instrument: Child Behavior Checklist (https://aseba.org/), Behavior Rating Inventory of Executive Function (https://www.parinc.com/), Vineland Adaptive Behavior Scales, Second Edition (https://www.pearsonassessments.com/), Kaufman Brief Intelligence Test (KBIT-2) (https://www.pearsonassessments.com/), California Verbal Learning Test Children’s Version (https://www.pearsonassessments.com/), Berry Buktenicia Developmental Test of Visual-Motor Integration (https://www.pearsonassessments.com/), Children’s Memory Scale (https://www.pearsonassessments.com/), Woodcock Johnson – III Tests of Achievement form (https://riversideinsights.com/home), Bayley Scales of Infant and Toddler Development (https://www.pearsonassessments.com/), Peabody Developmental Motor Scales (https://www.pearsonassessments.com/), Carey Temperament Scales (https://etesting.center/), Beck Depression Inventory (https://etesting.center/), Parenting Stress Index (https://www.parinc.com/), WeeFIM (https://www.udsmr.org/products-pediatric-rehab), Preschool Language Scale (https://www.pearsonassessments.com/), Developmental NEuro PSYchological Assessment II (https://www.pearsonassessments.com/)

Variable-Level Information: Available

Unique Datasets: 1

ABAS-II Adaptive Behavior Adult Form

Study Name: Adolescent Master Protocol, PH200 (AMP)

Dataset Description: ABAS-II Adaptive Behavior Adult Form (July 2024). Data updated in 2024 in DASH to include the follow-up time points through the final participant visit in 2020.

Dataset Format: csv

Topic: HIV/AIDS, Child Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://phacsstudy.org

Publication URLs: http://www.ncbi.nlm.nih.gov/pubmed/25286283, http://www.ncbi.nlm.nih.gov/pubmed/24366631, http://www.ncbi.nlm.nih.gov/pubmed/24145244, http://www.ncbi.nlm.nih.gov/pubmed/21702707, http://www.ncbi.nlm.nih.gov/pubmed/21407086

Keywords: Puberty, Neurodevelopment, Language and hearing, HIV, Growth, Cardiac function, Adolescents

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: All data from the entry (baseline) visit up through the end of follow-up for each participant, will be submitted with the exception of externally processed data (not collected by CRFs) including cardiac echocardiograms, DEXA scans, Food Frequency Questionnaire, and Physical Activity Questionnaire.

Information for obtaining study data not available in DASH: Researchers can go to the PHACS study website at phacsstudy.org and submit a data request. Researchers can also submit a capsule for their own scientific proposal to be reviewed by the PHACS network. Datasets are publically available for certain published articles based on journal requirements (see PHACS website above). Biospecimens are available.

Proprietary Data Collection Instrument: Adaptive Behavior Assessment System-2nd Edition (ABAS-II) (https://www.mhs.com/MHS-Assessment?prodname=abas2), Behavior Assessment System for Children, Version 2 (BASC-II) (https://www.pearsonclinical.com/education/products/100000658/behavior-assessment-system-for-children-second-edition-basc-2.html), Behavior Rating Inventory of Executive Function (BRIEF) (https://www.wpspublish.com/store/p/2689/(BRIEF)-Behavior-Rating-Inventory-of-Executive-Function-?utm_source=google&utm_medium=cpc&utm_campaign=brand&utm_term=behavior%20rating%20inventory&gclid=EAIaIQobChMI7I2Zt92y2wIVEQOGCh3O1Av6EAAYASAAEgIEY_D_BwE), Behavior Rating Inventory of Executive Function Self-Report (BRIEF-SR) (https://www.parinc.com/WebUploads/samplerpts/BRIEF_SR_INT_REP%20(2).pdf), Children’s Color Trails Test Annotated (https://www.parinc.com/Products/Pkey/52), Clinical Evaluation of Language Fundamentals – Fourth Edition (CELF) (https://www.pearsonclinical.com/language/products/100000442/clinical-evaluation-of-language-fundamentals-fourth-edition-celf4.html?Pid=015-8037-200&Mode=detail&Leaf=avpproducts), Parent Child Relationship Inventory (PCRI) (https://www.wpspublish.com/store/p/2898/pcri-parent-child-relationship-inventory), Wechsler Individual Achievement Test Second Edition (WIAT-II) (https://www.pearsonclinical.com/psychology/products/100000664/wechsler-individual-achievement-test-second-edition-wiat-ii.html), Wechsler Intelligence Scale for Children Fourth Edition (WISC-IV) (https://www.pearsonclinical.com/psychology/products/100000310/wechsler-intelligence-scale-for-children-fourth-edition-wisc-iv.html), Woodcock Reading Mastery Test (Form H) (https://www.pearsonclinical.com/education/products/100000647/woodcock-reading-mastery-tests-revised-normative-update-wrmt-r-nu.html), Wechsler Abbreviated Scale of Intelligence (WASI) (https://www.pearsonclinical.com/education/products/100000593/wechsler-abbreviated-scale-of-intelligence-wasi.html), Wechsler Adult Intelligence Scale 4th Edition (WAIS-IV) (https://www.pearsonclinical.com/psychology/products/100000392/wechsler-adult-intelligence-scalefourth-edition-wais-iv.html), Behavior Rating Inventory of Executive Function®–Adult Version (BRIEF-A) (https://www.parinc.com/Products/Pkey/25), Wechsler Adult Intelligence Scale - 3rd Edition (1997) (WAIS-III) (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Cognition-%26-Neuro/Wechsler-Adult-Intelligence-Scale-%7C-Third-Edition/p/100000243.html), Client Diagnostic Questionnaire (CDQ) based on Patient Health Questionnaire (PHQ) (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/)

Licensed Coding Standard: Clinical events and laboratory results are coded using MedDRA, but only diagnosis codes are provided in public use datasets.

Unique Datasets: 86

ABAS-II Adaptive Behavior Adult Form

Study Name: Adolescent Master Protocol, PH200 (AMP)

Dataset Description: ABAS-II Adaptive Behavior Adult Form (July 2024). Data updated in 2024 in DASH to include the follow-up time points through the final participant visit in 2020.

Dataset Format: sas7bdat

Topic: HIV/AIDS, Child Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://phacsstudy.org

Publication URLs: http://www.ncbi.nlm.nih.gov/pubmed/25286283, http://www.ncbi.nlm.nih.gov/pubmed/24366631, http://www.ncbi.nlm.nih.gov/pubmed/24145244, http://www.ncbi.nlm.nih.gov/pubmed/21702707, http://www.ncbi.nlm.nih.gov/pubmed/21407086

Keywords: Puberty, Neurodevelopment, Language and hearing, HIV, Growth, Cardiac function, Adolescents

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: All data from the entry (baseline) visit up through the end of follow-up for each participant, will be submitted with the exception of externally processed data (not collected by CRFs) including cardiac echocardiograms, DEXA scans, Food Frequency Questionnaire, and Physical Activity Questionnaire.

Information for obtaining study data not available in DASH: Researchers can go to the PHACS study website at phacsstudy.org and submit a data request. Researchers can also submit a capsule for their own scientific proposal to be reviewed by the PHACS network. Datasets are publically available for certain published articles based on journal requirements (see PHACS website above). Biospecimens are available.

Proprietary Data Collection Instrument: Adaptive Behavior Assessment System-2nd Edition (ABAS-II) (https://www.mhs.com/MHS-Assessment?prodname=abas2), Behavior Assessment System for Children, Version 2 (BASC-II) (https://www.pearsonclinical.com/education/products/100000658/behavior-assessment-system-for-children-second-edition-basc-2.html), Behavior Rating Inventory of Executive Function (BRIEF) (https://www.wpspublish.com/store/p/2689/(BRIEF)-Behavior-Rating-Inventory-of-Executive-Function-?utm_source=google&utm_medium=cpc&utm_campaign=brand&utm_term=behavior%20rating%20inventory&gclid=EAIaIQobChMI7I2Zt92y2wIVEQOGCh3O1Av6EAAYASAAEgIEY_D_BwE), Behavior Rating Inventory of Executive Function Self-Report (BRIEF-SR) (https://www.parinc.com/WebUploads/samplerpts/BRIEF_SR_INT_REP%20(2).pdf), Children’s Color Trails Test Annotated (https://www.parinc.com/Products/Pkey/52), Clinical Evaluation of Language Fundamentals – Fourth Edition (CELF) (https://www.pearsonclinical.com/language/products/100000442/clinical-evaluation-of-language-fundamentals-fourth-edition-celf4.html?Pid=015-8037-200&Mode=detail&Leaf=avpproducts), Parent Child Relationship Inventory (PCRI) (https://www.wpspublish.com/store/p/2898/pcri-parent-child-relationship-inventory), Wechsler Individual Achievement Test Second Edition (WIAT-II) (https://www.pearsonclinical.com/psychology/products/100000664/wechsler-individual-achievement-test-second-edition-wiat-ii.html), Wechsler Intelligence Scale for Children Fourth Edition (WISC-IV) (https://www.pearsonclinical.com/psychology/products/100000310/wechsler-intelligence-scale-for-children-fourth-edition-wisc-iv.html), Woodcock Reading Mastery Test (Form H) (https://www.pearsonclinical.com/education/products/100000647/woodcock-reading-mastery-tests-revised-normative-update-wrmt-r-nu.html), Wechsler Abbreviated Scale of Intelligence (WASI) (https://www.pearsonclinical.com/education/products/100000593/wechsler-abbreviated-scale-of-intelligence-wasi.html), Wechsler Adult Intelligence Scale 4th Edition (WAIS-IV) (https://www.pearsonclinical.com/psychology/products/100000392/wechsler-adult-intelligence-scalefourth-edition-wais-iv.html), Behavior Rating Inventory of Executive Function®–Adult Version (BRIEF-A) (https://www.parinc.com/Products/Pkey/25), Wechsler Adult Intelligence Scale - 3rd Edition (1997) (WAIS-III) (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Cognition-%26-Neuro/Wechsler-Adult-Intelligence-Scale-%7C-Third-Edition/p/100000243.html), Client Diagnostic Questionnaire (CDQ) based on Patient Health Questionnaire (PHQ) (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/)

Licensed Coding Standard: Clinical events and laboratory results are coded using MedDRA, but only diagnosis codes are provided in public use datasets.

Unique Datasets: 86

ABAS-II Adaptive Behavior Parent Form

Study Name: Adolescent Master Protocol, PH200 (AMP)

Dataset Description: ABAS-II Adaptive Behavior Parent Form

Dataset Format: sas7bdat

Topic: HIV/AIDS, Child Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://phacsstudy.org

Publication URLs: http://www.ncbi.nlm.nih.gov/pubmed/25286283, http://www.ncbi.nlm.nih.gov/pubmed/24366631, http://www.ncbi.nlm.nih.gov/pubmed/24145244, http://www.ncbi.nlm.nih.gov/pubmed/21702707, http://www.ncbi.nlm.nih.gov/pubmed/21407086

Keywords: Puberty, Neurodevelopment, Language and hearing, HIV, Growth, Cardiac function, Adolescents

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: All data from the entry (baseline) visit up through the end of follow-up for each participant, will be submitted with the exception of externally processed data (not collected by CRFs) including cardiac echocardiograms, DEXA scans, Food Frequency Questionnaire, and Physical Activity Questionnaire.

Information for obtaining study data not available in DASH: Researchers can go to the PHACS study website at phacsstudy.org and submit a data request. Researchers can also submit a capsule for their own scientific proposal to be reviewed by the PHACS network. Datasets are publically available for certain published articles based on journal requirements (see PHACS website above). Biospecimens are available.

Proprietary Data Collection Instrument: Adaptive Behavior Assessment System-2nd Edition (ABAS-II) (https://www.mhs.com/MHS-Assessment?prodname=abas2), Behavior Assessment System for Children, Version 2 (BASC-II) (https://www.pearsonclinical.com/education/products/100000658/behavior-assessment-system-for-children-second-edition-basc-2.html), Behavior Rating Inventory of Executive Function (BRIEF) (https://www.wpspublish.com/store/p/2689/(BRIEF)-Behavior-Rating-Inventory-of-Executive-Function-?utm_source=google&utm_medium=cpc&utm_campaign=brand&utm_term=behavior%20rating%20inventory&gclid=EAIaIQobChMI7I2Zt92y2wIVEQOGCh3O1Av6EAAYASAAEgIEY_D_BwE), Behavior Rating Inventory of Executive Function Self-Report (BRIEF-SR) (https://www.parinc.com/WebUploads/samplerpts/BRIEF_SR_INT_REP%20(2).pdf), Children’s Color Trails Test Annotated (https://www.parinc.com/Products/Pkey/52), Clinical Evaluation of Language Fundamentals – Fourth Edition (CELF) (https://www.pearsonclinical.com/language/products/100000442/clinical-evaluation-of-language-fundamentals-fourth-edition-celf4.html?Pid=015-8037-200&Mode=detail&Leaf=avpproducts), Parent Child Relationship Inventory (PCRI) (https://www.wpspublish.com/store/p/2898/pcri-parent-child-relationship-inventory), Wechsler Individual Achievement Test Second Edition (WIAT-II) (https://www.pearsonclinical.com/psychology/products/100000664/wechsler-individual-achievement-test-second-edition-wiat-ii.html), Wechsler Intelligence Scale for Children Fourth Edition (WISC-IV) (https://www.pearsonclinical.com/psychology/products/100000310/wechsler-intelligence-scale-for-children-fourth-edition-wisc-iv.html), Woodcock Reading Mastery Test (Form H) (https://www.pearsonclinical.com/education/products/100000647/woodcock-reading-mastery-tests-revised-normative-update-wrmt-r-nu.html), Wechsler Abbreviated Scale of Intelligence (WASI) (https://www.pearsonclinical.com/education/products/100000593/wechsler-abbreviated-scale-of-intelligence-wasi.html), Wechsler Adult Intelligence Scale 4th Edition (WAIS-IV) (https://www.pearsonclinical.com/psychology/products/100000392/wechsler-adult-intelligence-scalefourth-edition-wais-iv.html), Behavior Rating Inventory of Executive Function®–Adult Version (BRIEF-A) (https://www.parinc.com/Products/Pkey/25), Wechsler Adult Intelligence Scale - 3rd Edition (1997) (WAIS-III) (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Cognition-%26-Neuro/Wechsler-Adult-Intelligence-Scale-%7C-Third-Edition/p/100000243.html), Client Diagnostic Questionnaire (CDQ) based on Patient Health Questionnaire (PHQ) (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/)

Licensed Coding Standard: Clinical events and laboratory results are coded using MedDRA, but only diagnosis codes are provided in public use datasets.

Unique Datasets: 86

ABAS-II Adaptive Behavior Parent Form

Study Name: Adolescent Master Protocol, PH200 (AMP)

Dataset Description: ABAS-II Adaptive Behavior Parent Form (July 2024). Data updated in 2024 in DASH to include the follow-up time points through the final participant visit in 2020.

Dataset Format: csv

Topic: HIV/AIDS, Child Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://phacsstudy.org

Publication URLs: http://www.ncbi.nlm.nih.gov/pubmed/25286283, http://www.ncbi.nlm.nih.gov/pubmed/24366631, http://www.ncbi.nlm.nih.gov/pubmed/24145244, http://www.ncbi.nlm.nih.gov/pubmed/21702707, http://www.ncbi.nlm.nih.gov/pubmed/21407086

Keywords: Puberty, Neurodevelopment, Language and hearing, HIV, Growth, Cardiac function, Adolescents

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: All data from the entry (baseline) visit up through the end of follow-up for each participant, will be submitted with the exception of externally processed data (not collected by CRFs) including cardiac echocardiograms, DEXA scans, Food Frequency Questionnaire, and Physical Activity Questionnaire.

Information for obtaining study data not available in DASH: Researchers can go to the PHACS study website at phacsstudy.org and submit a data request. Researchers can also submit a capsule for their own scientific proposal to be reviewed by the PHACS network. Datasets are publically available for certain published articles based on journal requirements (see PHACS website above). Biospecimens are available.

Proprietary Data Collection Instrument: Adaptive Behavior Assessment System-2nd Edition (ABAS-II) (https://www.mhs.com/MHS-Assessment?prodname=abas2), Behavior Assessment System for Children, Version 2 (BASC-II) (https://www.pearsonclinical.com/education/products/100000658/behavior-assessment-system-for-children-second-edition-basc-2.html), Behavior Rating Inventory of Executive Function (BRIEF) (https://www.wpspublish.com/store/p/2689/(BRIEF)-Behavior-Rating-Inventory-of-Executive-Function-?utm_source=google&utm_medium=cpc&utm_campaign=brand&utm_term=behavior%20rating%20inventory&gclid=EAIaIQobChMI7I2Zt92y2wIVEQOGCh3O1Av6EAAYASAAEgIEY_D_BwE), Behavior Rating Inventory of Executive Function Self-Report (BRIEF-SR) (https://www.parinc.com/WebUploads/samplerpts/BRIEF_SR_INT_REP%20(2).pdf), Children’s Color Trails Test Annotated (https://www.parinc.com/Products/Pkey/52), Clinical Evaluation of Language Fundamentals – Fourth Edition (CELF) (https://www.pearsonclinical.com/language/products/100000442/clinical-evaluation-of-language-fundamentals-fourth-edition-celf4.html?Pid=015-8037-200&Mode=detail&Leaf=avpproducts), Parent Child Relationship Inventory (PCRI) (https://www.wpspublish.com/store/p/2898/pcri-parent-child-relationship-inventory), Wechsler Individual Achievement Test Second Edition (WIAT-II) (https://www.pearsonclinical.com/psychology/products/100000664/wechsler-individual-achievement-test-second-edition-wiat-ii.html), Wechsler Intelligence Scale for Children Fourth Edition (WISC-IV) (https://www.pearsonclinical.com/psychology/products/100000310/wechsler-intelligence-scale-for-children-fourth-edition-wisc-iv.html), Woodcock Reading Mastery Test (Form H) (https://www.pearsonclinical.com/education/products/100000647/woodcock-reading-mastery-tests-revised-normative-update-wrmt-r-nu.html), Wechsler Abbreviated Scale of Intelligence (WASI) (https://www.pearsonclinical.com/education/products/100000593/wechsler-abbreviated-scale-of-intelligence-wasi.html), Wechsler Adult Intelligence Scale 4th Edition (WAIS-IV) (https://www.pearsonclinical.com/psychology/products/100000392/wechsler-adult-intelligence-scalefourth-edition-wais-iv.html), Behavior Rating Inventory of Executive Function®–Adult Version (BRIEF-A) (https://www.parinc.com/Products/Pkey/25), Wechsler Adult Intelligence Scale - 3rd Edition (1997) (WAIS-III) (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Cognition-%26-Neuro/Wechsler-Adult-Intelligence-Scale-%7C-Third-Edition/p/100000243.html), Client Diagnostic Questionnaire (CDQ) based on Patient Health Questionnaire (PHQ) (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/)

Licensed Coding Standard: Clinical events and laboratory results are coded using MedDRA, but only diagnosis codes are provided in public use datasets.

Unique Datasets: 86

ABAS-II Adaptive Behavior Parent Form

Study Name: Adolescent Master Protocol, PH200 (AMP)

Dataset Description: ABAS-II Adaptive Behavior Parent Form (July 2024). Data updated in 2024 in DASH to include the follow-up time points through the final participant visit in 2020.

Dataset Format: sas7bdat

Topic: HIV/AIDS, Child Health

Study Type: Other Types of Clinical Research

Study Site Type: Multi Site

Study Website URL: https://phacsstudy.org

Publication URLs: http://www.ncbi.nlm.nih.gov/pubmed/25286283, http://www.ncbi.nlm.nih.gov/pubmed/24366631, http://www.ncbi.nlm.nih.gov/pubmed/24145244, http://www.ncbi.nlm.nih.gov/pubmed/21702707, http://www.ncbi.nlm.nih.gov/pubmed/21407086

Keywords: Puberty, Neurodevelopment, Language and hearing, HIV, Growth, Cardiac function, Adolescents

Requires IRB approval for data access: No

Requires study-specific approval for accessing data: No

Data Use Limitations: None

Study data availability in DASH: Certain study data is not available in DASH

Description of study data not available in DASH: All data from the entry (baseline) visit up through the end of follow-up for each participant, will be submitted with the exception of externally processed data (not collected by CRFs) including cardiac echocardiograms, DEXA scans, Food Frequency Questionnaire, and Physical Activity Questionnaire.

Information for obtaining study data not available in DASH: Researchers can go to the PHACS study website at phacsstudy.org and submit a data request. Researchers can also submit a capsule for their own scientific proposal to be reviewed by the PHACS network. Datasets are publically available for certain published articles based on journal requirements (see PHACS website above). Biospecimens are available.

Proprietary Data Collection Instrument: Adaptive Behavior Assessment System-2nd Edition (ABAS-II) (https://www.mhs.com/MHS-Assessment?prodname=abas2), Behavior Assessment System for Children, Version 2 (BASC-II) (https://www.pearsonclinical.com/education/products/100000658/behavior-assessment-system-for-children-second-edition-basc-2.html), Behavior Rating Inventory of Executive Function (BRIEF) (https://www.wpspublish.com/store/p/2689/(BRIEF)-Behavior-Rating-Inventory-of-Executive-Function-?utm_source=google&utm_medium=cpc&utm_campaign=brand&utm_term=behavior%20rating%20inventory&gclid=EAIaIQobChMI7I2Zt92y2wIVEQOGCh3O1Av6EAAYASAAEgIEY_D_BwE), Behavior Rating Inventory of Executive Function Self-Report (BRIEF-SR) (https://www.parinc.com/WebUploads/samplerpts/BRIEF_SR_INT_REP%20(2).pdf), Children’s Color Trails Test Annotated (https://www.parinc.com/Products/Pkey/52), Clinical Evaluation of Language Fundamentals – Fourth Edition (CELF) (https://www.pearsonclinical.com/language/products/100000442/clinical-evaluation-of-language-fundamentals-fourth-edition-celf4.html?Pid=015-8037-200&Mode=detail&Leaf=avpproducts), Parent Child Relationship Inventory (PCRI) (https://www.wpspublish.com/store/p/2898/pcri-parent-child-relationship-inventory), Wechsler Individual Achievement Test Second Edition (WIAT-II) (https://www.pearsonclinical.com/psychology/products/100000664/wechsler-individual-achievement-test-second-edition-wiat-ii.html), Wechsler Intelligence Scale for Children Fourth Edition (WISC-IV) (https://www.pearsonclinical.com/psychology/products/100000310/wechsler-intelligence-scale-for-children-fourth-edition-wisc-iv.html), Woodcock Reading Mastery Test (Form H) (https://www.pearsonclinical.com/education/products/100000647/woodcock-reading-mastery-tests-revised-normative-update-wrmt-r-nu.html), Wechsler Abbreviated Scale of Intelligence (WASI) (https://www.pearsonclinical.com/education/products/100000593/wechsler-abbreviated-scale-of-intelligence-wasi.html), Wechsler Adult Intelligence Scale 4th Edition (WAIS-IV) (https://www.pearsonclinical.com/psychology/products/100000392/wechsler-adult-intelligence-scalefourth-edition-wais-iv.html), Behavior Rating Inventory of Executive Function®–Adult Version (BRIEF-A) (https://www.parinc.com/Products/Pkey/25), Wechsler Adult Intelligence Scale - 3rd Edition (1997) (WAIS-III) (https://www.pearsonassessments.com/store/usassessments/en/Store/Professional-Assessments/Cognition-%26-Neuro/Wechsler-Adult-Intelligence-Scale-%7C-Third-Edition/p/100000243.html), Client Diagnostic Questionnaire (CDQ) based on Patient Health Questionnaire (PHQ) (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1495268/)

Licensed Coding Standard: Clinical events and laboratory results are coded using MedDRA, but only diagnosis codes are provided in public use datasets.

Unique Datasets: 86