NICHD Data and Specimen Hub (DASH) Tutorial


iMac with NICHD DASH homepage

This User Tutorial provides an overview of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Data and Specimen Hub (DASH) and describes its features and functionality. 

This tutorial contains step-by-step instructions for navigating the NICHD DASH system. You may also refer to the Frequently Asked Questions (FAQs) page for additional information, or you may ask specific questions through the Feedback page if they are not addressed in either the tutorial or FAQs. 

NICHD DASH Logo

NICHD DASH is a centralized resource for researchers to store and access data from NICHD-funded research studies to use for secondary research. It serves as a mechanism for NICHD-funded extramural and intramural investigators to share de-identified research data from studies in accordance with the NIH Data Sharing Policy and the NIH Genomic Data Sharing Policy.

By supporting data sharing through NICHD DASH, NICHD aims to accelerate scientific findings and improve human health.

NICHD DASH is a free public resource designed for the scientific research community.

The NICHD DASH website, https://dash.nichd.nih.gov/, is compatible with the following Internet browsers:

  • Google Chrome
  • Internet Explorer 10 or 11
  • Mozilla Firefox

You do not need to create an account to browse or search for study data stored in NICHD DASH; however, you do need an account to submit or request study data and download study documentation. Creating an account will allow the NICHD DASH Administrator to communicate with you about your data submissions and requests.
The registration process differs for NIH and non-NIH staff.

1. Registration for NIH Staff

If you have NIH Enterprise Directory (NED) credentials or a PIV card, you can register for a NICHD DASH account using those credentials:

  1. 1. Access NICHD DASH using one of the compatible browsers listed in Access.
  2. 2. Click on the "Sign Up/In" button located at the top right of the homepage.
  3. Screenshot of 'Sign Up/In button

  4. 3. Select 'Login using NIH Credentials' on the login screen.
  5. Screenshot of login page
  6. 4. You will be directed to the NIH login page. You can login using your NIH Enterprise Directory (NED) User ID or your PIV card. Complete the required fields, click 'Save' to save your login information and then click 'Next'.
  7. NIH Login
  8. 5. On NICHD DASH ‘User Agreement’ page click the ‘I Agree’ checkbox and then click 'Register'. The system creates your DASH NIH account and you can now login.
  9. Screenshot of NICHD DASH User Agreement

2. Registration for Non-NIH Staff

If you do not have NIH credentials, you may register for NICHD DASH using a Non-NIH Email address.

  1. 1. Access the NICHD DASH using one of the compatible browsers listed in Access.
  2. 2. Click on the 'Sign Up/In button' located at the top right of the homepage.
  3. Screenshot of 'Sign Up/In' button

  4. 3. Click the “Sign Up” button.
  5. 4. On the 'Create an NICHD DASH Account' page, complete the requested information. All required fields marked with an asterisk must be completed. Click 'Next' when finished
  6. Screenshot of 'Create an Non-NIH Account Form'

  7. 5. When selecting your institution, you may choose from a dropdown list, or, if your institution is not yet listed, you may add your institution. Be sure to complete all required fields about your institution, which are marked with an asterisk.
  8. Screenshot of 'Create an Non-NIH Account'
  9. 6. Read the NICHD DASH User Agreement, click on the "I Agree" check box to accept the Terms and Conditions of the Agreement, and click on "Register" to submit your registration.
  10. Screenshot of NICHD DASH User Agreement
  11. 7. If at any point you wish to change the information you provided on the previous screen, select “Back” to revisit the 'Create an NICHD DASH Account' page. Please ensure you use the “Back” button located at the bottom of the page (below the “Register” button), and not your browser’s back button.

    NOTE: When you are selecting your institution, if you don't see your institution in the dropdown list, you can select "Click here to add an institution" and populate your institution information. If you are from an institution that is outside of the United States, field options will change when you select your country.

After you submit your registration, you will receive a confirmation email within one business day. Please click on the confirmation link in the email to verify your registration. You will then be able to log into NICHD DASH with the email address and password you provided during registration. If you don’t receive a confirmation email within 24 hours please contact the DASH administrator at support@dash.com.

3. Login to Your Account

Perform these steps to log in to your NICHD DASH account:

  1. 1. Access NICHD DASH using one of the compatible browsers listed in Access.
  2. 2. Click on the "Sign Up/In" button located at the top right of the homepage.
  3. Screenshot of 'Sign Up/In' button
  4. 3. If you registered with a non-NIH email address, enter the email and password that you used to register in NICHD DASH, and click "Login." If you do not remember your password, click “I Forgot my Password.” You will be prompted to enter the email address associated with your account, and the DASH Administrator will email you a link to reset your password.
  5. Screenshot of general login page

  6. 4. If you registered with an NIH account, select "Login using NIH Credentials." Log in using your NIH Enterprise Directory (NED) credentials or your PIV card.
  7. Screenshot of 'User Login' modal


You may browse and view information about studies and data archived in NICHD DASH without creating an account. This section outlines how to do so.

1. Browse/Search Options

You can search for study items archived in NICHD DASH in several ways:

Option 1: Menu Bar - Explore Study Catalog

Click on “Explore DASH Catalog,” located on the navigation bar at the top of the NICHD DASH homepage. You will be directed to the “Browse Catalog of Studies” page, where you can browse studies, and filter by topic, study type, and life stage.

Screenshot of 'Browse Catalog of Studies' page

Clicking on a study title on the “Browse Catalog of Studies” page will take you to the “Study Overview” page. The Study Overview page displays the study description, descriptive documents, study schema (if provided by study submitter), study timeline, study population, and subjects by sex/life stage/ethnicity/race/location.

Screenshot of 'Study Overview' page

Option 2: Menu Bar - Find Study Data

Click on “Find Study Data,” located on the menu bar at the top of the NICHD DASH homepage. You will be directed to the search page where you can search for specific study items. See the Filter Your Search section for further information about refining and filtering your search.

Screenshot of 'Study Data' page

Option 3: Search Bar/Keyword Search

Enter only one keyword in the search field (bar), located below the video on the NICHD DASH homepage, and click on the magnifying glass icon. You will be directed to the NICHD DASH Study Data Search Results page populated with your search results. If you wish to add additional keywords, you may add them one at a time in the search bar at the top left on the NICHD DASH Study Data page. See the Filter Your Search section for further information about refining and filtering your search.

Screenshot of 'Search Bar/Keyword Search' on homepage

Option 4: Recently Submitted Studies

Recently submitted Studies are featured at the bottom on the homepage. Click on any study in the “Recently Submitted Studies” frames and you will be directed to the Study Overview page of the study you selected. The Study Overview page displays the study description, descriptive documents, study structure, study timeline, study population, and subjects by sex/life stage/ethnicity/race/location.

Screenshot of 'Recently submitted studies' on homepage

2. Filter Your Search

You can filter and refine your search results displayed on the NICHD DASH Study Data page using the Search Bar/Keyword search or the Topic/Study/Dataset/Document Filter:

Option 1: Search Bar/Keyword search

Enter only one keyword in the search field (bar), located on the left of the NICHD DASH Study Data page, and click on the magnifying glass icon. To refine your search, enter additional keywords one at a time in the search bar and click on the magnifying glass. The NICHD DASH search page will be populated with your search results.

Screenshot of 'Search NICHD Dash' on study data page

Option 2: Topic/Study/Dataset/Document Filter

Located on the left, below the search bar are additional filters you can use to narrow your search:

  1. Click >> arrow to the right of the Topic, Study, Dataset or Document facet bars to expand the list and view available options. The number to the right of the topic name indicates the number of items related to that subject.
  2. Click a subject to select it. You may select multiple subjects.
  3. Screenshot of 'Topic Drop down menu' on study data page

3. View Your Results

You can view your search results on the right side of the Search Results page based on the criteria and filters you selected.

For each result, you can view additional information by clicking on “Show Details,” located at the bottom left of each search result. Once you have clicked on “Show Details, you may click on “View the Study Page” to view information about the study to which this study item belongs. You will be directed to the Study Overview page that displays information such as the study description, descriptive documents, study structure, study timeline, study population, and subjects by sex/life stage/ethnicity/race/location.

NOTE: Click on the study name (above the item name) to jump directly to the Study Overview page.

Screenshot of 'Show Details on a Study' on faceted browse

4. Limit the Number/Sort Search Results

You can choose the number of results to be displayed on a single page (i.e., 10, 20, or 50) and/or the criteria for sorting the results (i.e., item title, item category, or study name) located at the top of the results page. Choose the desired options using the drop down boxes located at the top of the Search Results page.

NOTE: To deselect all filters, click on "Remove All Filters" located at the top of the Results page. To remove individual filters, click on "X" next to each filter located at the top of the Results page.


You must have an active NICHD DASH account and be logged into the system to request data from DASH. You may request data from any study archived in DASH. Please consult the Data Request Checklist before requesting Data. You will be required to submit the following:

  1. 1. Data Request Form signed by the Data Requester,
  2. 2. NICHD DASH Data Use Agreement signed by the Data Recipient and the Authorized Organization Representative from your institution, and
  3. 3. Institutional Review Board (IRB) approval, if required for the requested study data (as shown on the Study Overview page)
  4. NOTE: If you are interested in obtaining datasets from multiple studies, you will need to submit a separate Data Request Form, NICHD DASH Data Use Agreement, and IRB approval (if applicable) for each study.

1. Add to Your Cart

You can add data to your cart from either 1) the Study Data Search Results page or 2) the Study Overview page.

Option 1: From Search Results Page

After conducting a search, you can click on the check box next to a study item and then click “Add Selected Items to Cart”. You can select multiple check boxes to add multiple study items to your cart. The study item will update to inform you that it is “In Cart” and “Requires Request.”

Screenshot of 'Adding to Cart'

Option 2: From Study Overview Page

Each study has a Study Overview page, which is accessible from any of the Browse/Search methods outlined previously. When you are on the Study Overview page, click on “Add Study to Cart” located below the study name. This will add all items associated with that Study to your cart.

Screenshot of 'Adding to Cart' from the study page

You can continue exploring data after adding items to your cart. You can click "My Cart" on the top navigation bar to view all the items you have added to your cart.  From the “My Cart” page, you can remove items previously added to your cart.

Screenshot of My Cart button

From the “My Cart” page, you can remove items previously added to your cart.

Screenshot of deleting from cart

2. Complete a Request

After you have added study items (datasets or documents) to your cart, you can start the data request process by following the instructions below.

  1. 1. Click on "My Cart" located at the top right of the menu bar.
  2. Screenshot of 'Accessing My Cart'

  3. 2. The study items you have added to your cart are be grouped by study. Click on "Request Access" to initiate the data request.
  4. Screenshot of 'Request Access in Cart'

  5. 3. A pop-up window will provide guidance on “Getting Access to Study Items.” Click on “Continue” in the pop-up. You will be directed to the first page of the Data Request Form.
    Screenshot of 'Data Request Guidelines'
  6. 4. If you have previously submitted a request, you will see a pop-up that asks if you would like to use information from previous requests. If you select “Yes,” the General, Request Information, and Affiliates sections will be pre-populated with your information from the previous request you select from the drop down list..
    Screenshot of 'Use Information from Previous Requests'
  7. 5. Complete the Data Request Form. The left-hand navigation pane will show you the various sections you will need to complete to request data from NICHD DASH. All fields marked with an asterisk (*) are required to be completed in order to move on to the next page. The General page of the online Data Request Form will be pre-populated with the information you provided when you created your NICHD DASH account. Review the information and then click “Next.”
  8. NOTE: You may start and stop this process at any time, and resume at the section where you left off. Be sure to click “Save” at the bottom of the window you are working on so your work is available when you return.

    Screenshot of 'Data Request General Page'

  9. 6. The Study Information page of the online Data Request Form requests information about the research study for which you will be using the data. Complete required fields marked by an asterisk (*).
  10. Screenshot of 'Data Request Study Information Page'

  11. 7. The Funding Information section of the Study Information page asks you to indicate your Funding Source, which can be NIH Intramural, NIH Extramural, or Other. You will also be asked to include Funding Type and Identifying Number attached to that Funding Type. Select your Funding Source and Funding Type, enter the Identifying Number, and click on "Add Funding Information." If your study has multiple identifying numbers, please make a new Funding Information entry for each identifying number.
  12. Screenshot of 'Data Request Study Funding Information'

  13. 8. The Principal Investigator (PI) section requests information about the PI for your study. If you are the PI, click on “Use information from my registered account.” The Principal Investigator must register as a user in NICHD DASH. They must also be registered under the same institution as the person requesting NICHD DASH data for a study. If you are not the PI, select a registered user from your institution from the dropdown list. If the PI has not already created an NICHD DASH account, please ask him or her to do so, and return to this section to complete your request.
  14. 9. The Authorized Organizational Representative (Institutional Business Official) section requests the name and contact information for the Authorized Representative from your institution. NIH defines the Authorized Organizational Representative as the individual, named by the applicant organization, who is authorized to act for the applicant and to assume the obligations imposed by the Federal laws, regulations, requirements, and conditions that apply to grant applications or grant awards. Please see the NIH Grants Glossary page for additional details. This is the person from your institution with the authority to sign your Data Use Agreement. The Authorized Representative does not need to be registered in DASH. However if they are a registered user and you enter their registered email address, the system will auto-populate the appropriate user information.
  15. Screenshot of 'PI and Authorized Rerpresentative'

  16. 10. Click "Next" when complete. This will save your work and move to the next page. You may also click on "Save" to save completed sections without leaving the page.
  17. Screenshot of navigation buttons
  18. 11. The Affiliates page of the online Data Request Form will ask you if there are other researchers, programmers, analysts or anyone that will access the data being requested from NICHD DASH. You must report all affiliates of your study. They must be registered users in NICHD DASH and will be bound by the Data Use Agreement. If no affiliate access is needed, select "No," and then click "Next."
  19. Screenshot of 'affiliates'

    NOTE: Affiliates are other researchers from your institution only. Collaborators from other institutions must submit their own separate data requests.

  20. 12. If affiliates from your institution will be using the data, select "Yes." Select your affiliates from the dropdown list and click on the "Add and Affiliate" button. You may select more than one affiliate.
  21. Screenshot of 'answering yes to affiliates'

    NOTE: All affiliates must be pre-registered in DASH to appear in the dropdown list. If you are unable to select an affiliate, save your work by clicking on the “Save” button and return to this page when your affiliates have registered. DO NOT continue to the “Generate Package” section until you have completed this section, as you will not be able to add affiliates once your package is generated.

  22. 13. Affiliate names will appear below the dropdown list. To remove an affiliate, click on the "x" to the right of the name.
  23. Screenshot of 'remove affiliates'
  24. 14. When you have completed adding affiliate names, click on "Next"
  25. 15. After you have completed the required information in the Data Request Form, the system will take you to the "Generate Package" section. Once you confirm your request a Data Request Package will be sent to you via email.
  26. Screenshot of 'Data Request Generate Package Page'

    NOTE: DO NOT make changes to or add information in the Data Request Package you receive. If you make any changes to your data request (e.g. adding or removing affiliates) after the system has generated the package, your request package will be invalidated, and you will need to generate your request package again. If there are changes to the request, login to NICHS DASH, make the changes to your Data Request and generate a new Data Request Package.

  27. 16. Please review all documents in the Data Request Package prior to requesting appropriate signatures from your institution. The requester is responsible for coordinating with all parties involved and collecting all signatures required to complete the data request.
  28. 17. After obtaining signatures, scan your documents and log back in to the NICHD DASH system. Click on “My Cart” in the top navigation bar to begin. Next to the requested study, click “Upload Package.” You will be directed to the Upload page.
  29. Screenshot of upload package
  30. 18. Click “Choose File” and select the appropriate file from your computer to upload. Each required file must be uploaded separately. In the example below, two of the three required documents have been uploaded.
  31. Screenshot of 'Data Request Upload Package Page'

  32. 19. Once you have uploaded your documents, click "Next" to move to the Data Request Submission page. Then click the "Submit" button to submit your request.
  33. Screenshot of 'Data Request Submission Page'

  34. 20. Your data request will be reviewed by the NICHD DASH Data Access Committee and possibly by a study-specific approval entity such as the Steering Committee of the study you requested. You will be notified via email if any updates or additional information are needed for your request. You will be notified by email if your request is approved or not approved. You may also check on the status of your data request at any point from your cart.

    NOTE: Some studies have “cart level approval,” meaning you will be granted access to only the specific items you have requested. Once approved, these specific items you have requested will be available in your “Inbox” for download.

    Other studies have “study level approval.” Upon approval of your request, you will have access to all study items (documents, datasets, images, etc.) and not just the items you specifically requested. All study items will be displayed on the “My Approved Items” page. The specific items you have requested will be available in your “Inbox” for download. If at a later time, you are interested in other items from the approved study, you will be able to download them without going through the approval process.

    When you add items with “Study level approval” to the cart, a pop-up window will appear to indicate the type of approval available for the study.


After logging in to NICHD DASH, click on “Workbench” icon located on the top menu bar of NICHD DASH when you are logged in to the website. Note that your workbench will appear empty until you submit a data request, and your request is approved. After you have received notification from the NICHD DASH Administrator that your data request has been approved, you will be able to access the study data from your “Workbench.” The Workbench has three sections: “Inbox,” “My Approved Items,” and “DUA Management.” Studies in DASH will often have hundreds of study items, and researchers may only be interested in a subset of those items. For that reason, you have separate “Inbox” and “My Approved Items” pages. The “Inbox” contains the subset of interest, and “My Approved Items” contains the comprehensive list of study items you have access to.

1. Inbox

Your inbox functions similarly to an email inbox. Once your data request is approved, the specific study items you are interested in are delivered to your inbox, where you may select individual items and perform actions on them. You may:

  • Download selected items from your inbox to your computer.
  • Remove (archive) selected items from your Inbox. This does not delete the item from your Workbench. All approved items will continue to be available in the “My Approved Items” page.

When you click “Download” a pop-up window will inform you that your download is being prepared. Large downloads can take up to 15 minutes. The pop-up will inform you when your download is ready.

Screenshot of 'Manage Study Items in Inbox'

2. My Approved Items

Your Approved Items page always displays all items that you have access to. You may move items from your approved items page to your inbox for download.

Screenshot of 'My Approved Items'

A grey check box means the item is already in your Inbox

3. Data Use Agreement Management

All of your NICHD DASH Data Use Agreements (DUAs) are grouped by request and arranged chronologically on the “DUA Management” page of your “Workbench.” You can download copies of your Data Use Agreements, and view their expiration dates. You can also add and remove Affiliates for this study on the DUA Management Page. First, scroll to the Study. Then click the “Actions” button, and click “Modify Affiliates”.

Screenshot of 'DUA Management'

As per the NICHD DASH Policy, data submitted to NICHD DASH must be stripped of the 18 HIPAA identifiers and coded, with keys to the codes retained by the submitting institution(s). NICHD has developed Data De-identification and Coding Guidance for investigators to utilize when preparing data for submission to NICHD DASH.

All data submissions to NICHD DASH must be accompanied by the following:

  • An Institutional Certification from responsible institutional official(s) of the submitting institution stating that an Independent Review Board (IRB) and/or Privacy Board, as applicable, has approved submission of the study to NICHD DASH and that the identities of research participants will not be disclosed to NICHD.
  • Proper documentation which ensures meaningful use of the data and prevents misuse, misinterpretation, and confusion.

Submitting study data to NICHD DASH includes the following major steps:

  1. Complete online required information about the data (such as general information about the study and the investigator(s), policy compliance, and data distribution instructions)
  2. Upload compliance documentation (such as Institutional Certification)and descriptive documents (such as study protocol, code books, etc.) into NICHD DASH
  3. Annotate and prepare your study data for submission to NICHD DASH. You will be provided with a downloadable Data Preparation Tool (DPT) to assist you with offline annotation and preparation of your data.
  4. Upload your study data to NICHD DASH via secure data transfer methods

1. Who May Submit

All investigators (extramural and intramural) who have studies funded by NICHD are encouraged to submit their studies to NICHD DASH. To submit studies to NICHD DASH, you must be registered and logged into your NICHD DASH account.

2. Required Documents for Submission

Submission of data to NICHD DASH must be accompanied by the following documentation:

  1. Institutional Certification: This is an administrative compliance document and will not be provided to DASH users. Submitters must provide an Institutional Certification from the responsible Institutional Official(s) of the submitting institution stating that they approve submission to NICHD DASH and that the identities of research participants will not be disclosed to NICHD. The template for the Institutional Certification is available under the DASH Resources Tab.
    The Institutional Certification must assure that:
    • The data submission is consistent with all applicable national, tribal, and state laws and regulations, as well as institutional and study policies;
    • The appropriate research uses of the data and its limitations that are consistent with the informed consent documents are delineated during the process of data submission to NICHD DASH
    • The investigator will inform the NICHD DASH if data needs to be removed from NICHD DASH for any reason, such as change in informed consent; and
    • An IRB and/or Privacy Board (as applicable) has reviewed and verified that:
      • Data sharing via NICHD DASH does not conflict with the informed consent of study participants from whom the data were obtained
      • Data has been de-identified in accordance with NICHD DASH Policy, and
      • Data were collected in a manner consistent with 45 CFR Part 46.
  2. Descriptive Documents: These documents ensure meaningful use of the data and are provided to the Users who are interested in requesting your study data from NICHD DASH. The following four documents are required while others such as data collection methodology and data analysis plan are optional:

3. Navigating through NICHD DASH Submission

Once you have started the submission process, please navigate using the NICHD DASH navigation buttons and NOT your browser buttons.

There are two ways to navigate among pages in the NICHD DASH submission process. The figure below shows a sample submission information page. On the left hand side of the page is a Navigation pane, and at the bottom of the page are blue buttons: Previous, Save, and Next, depending on the section you are in.

Screenshot of 'Sample NICHD DASH Page with Navigation'


NOTE: Using your Internet browser's "Back" button will take you out of the NICHD DASH submission process. This will cause you to lose any information that you have not saved. To avoid this, please use the navigation pane provided and click "Save" often.



Screenshot of 'Navigation Bar'


The left-hand navigation pane shows each of the major submission steps. If you have not completed a section, it will appear in unbolded grey text. Sections that are completed are shown in bolded black text with a check mark to the right. The section you are currently working on is shown in bolded blue text with an arrow mark to the right.

You may return to any section that you have already completed by clicking on the section name.

At the bottom of each page, there are blue buttons labeled "Previous," "Save," and "Next."



Screenshot of 'Navigation Buttons'


Use the blue "Previous" and "Next" buttons to navigate between pages—to move forward to the next page or to return to a previous page to make additions or corrections. Do NOT use your browser's "Back" button, or you will exit the submission process and may lose your work. The "Save" button will save completed sections of the page without leaving the current page.

4. Start a New Submission

Follow the instructions below to submit your study to NICHD DASH. You may save your work at any point during the submission process and resume at a later time. Note that only completed sections within a page will be saved. To access ongoing study submissions, click on the "Submissions" button on the top menu bar of NICHD DASH and select "Manage Submissions" from the dropdown list. For more information, see "Tracking your Submission" via the "Manage Submissions" Dashboard.

NOTE: You MUST de-identify all your study data prior to initiating submission.


  1. Click on the "Submissions" button on the top menu bar of NICHD DASH, and select "Submit Study."

    Screenshot of 'Submit Study'
  2. You will be directed to the "Study Submission Overview" page, where you can download submission checklists to help prepare your study for submission.

    Screenshot of 'Study Submission Guidelines'
  3. Click the "Start Submission" button. You will be directed to the General submission page (part 1).

5. Submission – General Part 1

In the following steps, you will provide information on the "General Part 1" page regarding the study you are submitting.

Screenshot of 'General Submission Part 1'



  1. Fill in your "Study Name" and "Abbreviation."
  2. Select whether the study is a "Single Site" or "Multi site."
  3. From the dropdown menu, select the "“NICHD Division/Branch/Center."
  4. Screenshot of 'Point of Contact Information'
  5. Provide Point of Contact (PoC) information. The PoC should be a person who can be contacted long-term about any study questions or concerns.
    • If you are the PoC, check the box labeled “Use information from my registered account.” NICHD DASH will autocomplete the PoC with your information (i.e., the person logged into the system at the time).
    • If you enter the email address of a registered User in the “Email Address” field, NICHD DASH will autocomplete the PoC information associated with that email address.
    • If you enter an email address and the fields do not autocomplete, fill in the remaining fields. NICHD DASH will remember this information, based on the email address, for future submissions.
  6. Screenshot of 'Select an Institution'
  7. Select your institution from the dropdown list. If you do not see your institution, select the "Click here to add your institution" link, and fields will appear for you to add your institution.
  8. Screenshot of 'Add an Institution'
  9. To add your institution, complete all of the required fields for your institution and division. This will make your institution available for your future submission.
  10. Select "For Profit" or "Not For Profit".
  11. Complete information about the Division. If you click “Use my institution Name” or “Use my institution address”, those sections will autocomplete.
  12. Screenshot of use institution info
  13. Click "Next". You will be taken to the General submission page (Part 2).

6. Submission – General Part 2

In the following steps, you will provide information about the Principal Investigator (PI) for this study.

Screenshot of 'General Submission Part 2'

  1. Indicate the study PI:
    • If the Study PI is the Point of Contact defined on the previous page, select "Point of Contact."
    • If you are the Study PI, select "Submitter."
    • If the Study PI is neither the PoC nor the submitter, select "Other," and fields will appear for you to enter additional information.
  2. You may optionally provide Data Center Principal Investigator or Co-Investigator information. Click on "+Add Co-Investigator" if you need to add additional names. Click on "Remove Co-Investigator" to remove an entry.
  3. Screenshot of 'General Submission Part 2'

  4. Click "Next" to save your work and continue to the next page.

7. Submission – Policy Compliance

The Policy Compliance page contains regulatory questions with regard to your study. These fields are all required, and you may provide a narrative explanation if necessary.

Screenshot of 'Policy Compliance'

  1. On the Policy Compliance page, answer the regulatory questions by selecting "Yes" or "No" for each question. If you select "No," provide an explanation.
  2. Click "Next." You will be taken to the Study Information page.

8. Submission – Study Details

In the following steps, you will enter a study description that includes a narrative description, dates, keywords, funding information, and additional details. Secondary researchers will be able to use this description to get a better idea of your study and ensure that it is the correct one for them to request.

Study Information


The Study Information section requires you to enter a narrative description of your study, enrollment start and end dates, and data collection start and end dates.


Screenshot of 'Study Information'
  1. Provide a narrative study description including objective.
  2. Enter enrollment start and end dates and data collection start and end dates in yyyy-mm-dd format.
  3. Enter keywords by typing in the keyword one at a time and clicking "Add Keyword."
  4. Add topics by selecting a topic from the dropdown list and clicking "Add Topic." This list is generated from the NICHD A to Z Health and Human Development Topics.
  5. Screenshot of 'Adding Keywords and topics'
  6. To remove keyword(s) or topic(s), click on the “x” next to the keyword or topic.
  7. Answer Yes/No if you are submitting all of the data from your study to DASH. If you answer “No,” new fields will open asking you to provide details.

Funding Information


In the Funding Information section, identify the funding source and additional identifying information.

  1. First, select "Funding Source". If you select "NIH Intramural" or "NIH Extramural," you will see a dropdown list of NIH institutions.
  2. Select your institution from the dropdown list. If your funding institution is not NIH Intramural or NIH Extramural, then select “Other” and then select from the drop-down or click on the corresponding link to add the institution.
  3. Screenshot of 'Funding Information'
  4. Select your funding type.
    • If you select "Grant" or "Contract," to provide the grant or contract ID in the "Identifying Number" field.
    • If If you select "Other," you must provide information in the "Please specify" input field, which will appear.
    Screenshot of 'Funding Information- add additional funding'
  5. If you need to add additional funding information, click "Add Funding Information." If you wish to delete additional funding information, click on the “X.”

Research Details


In the Research Details section, you’ll add your clinical research type.

Screenshot of 'Clinical Research Type'
  1. Select your Clinical Research Type from the dropdown list.
  2. Screenshot of URL links
  3. Enter URL links for your Study Website, ClinicalTrials.gov, and dbGaP, if applicable. You may also provide up to five links to your publications. If you have more publications you would like to provide, you can upload a list of publications on the descriptive documents page.
  4. Click on "Next." You will be taken to the Study Population page.

9. Submission – Study Population

The Study Population page will allow you to enter information about the different population groups of your study. Not all population information is required; however, you are encouraged to be as specific as possible so that others can better understand your study.

Screenshot of 'Study Total Population and Description'
  1. Enter the total population of your study into the "Total Population" field.
  2. Add a description of your total population into the "Total Population Description" field.

    Screenshot of 'Study Population by Sex'
  3. Provide a breakdown of study participants by sex. Enter the population by sex in the "Males," "Females," "Unknown," and "Undifferentiated" fields.

    Screenshot of 'Study Population by Life Stage'
  4. Provide a breakdown of study participants by "Life Stage," as defined by NICHD Pediatric Terminology.

    Screenshot of 'Study Population by Ethnicity'
  5. Provide a breakdown of study participants by ethnicity (Hispanic, Non-Hispanic, or Unknown).

    Screenshot of 'Study Population by Race'
  6. Provide a breakdown of study participants by race. The most recent standards for race definitions can be found through the U.S. Department of Health and Human Services Implementation Guidance on Data Collection Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status

    Screenshot of 'Study Population by Location'
  7. Provide a breakdown of study participants by location. Select a location from the dropdown list and click on "+Add Location." For international studies, click on "Click here for International Study Locations (by Country). You will then be able to add subjects by U.S. or International location."

    Screenshot of 'Study Population by Location'

10. Submission – Data Distribution

In the following steps, you will enter data distribution information, including instructions for acknowledgements by users of your study data.

Screenshot of 'Data Distribution Instructions'
  1. Answer all the Yes/No questions related to study data distribution.
    • In Question 1, please mark whether or not you require additional approvals for access to your data beyond the approvals made by the NICHD Data Access Committee. If you select ‘Yes’, a new field will appear for details.
    • In Question 2, please mark whether or not there are any limitations to the use of the data. If you select ‘Yes’, a new field will appear for details.
    • In Question 3, please mark whether or not a requester of your data will need approval from his or her Institutional Review Board before access to your study data can be granted.

  2. Screenshot of 'Data Distribution Instructions'

  3. Provide instructions for how you wish your study to be acknowledged by researchers who use your study data.
  4. Click "Next."

11. Supporting Documents – Compliance

In the following steps, you will upload required and optional compliance documents.

Screenshot of 'Supporting Documents - Compliance'
  1. Upload yourInstitutional Certification. This is a required field.
  2. Click on the "Upload" button, select the signed Institutional Certification saved on your local computer, and click "OK." Your document title will appear on the page to verify it has been uploaded.

    NOTE: Institutional Certification is an administrative requirement for submitting studies in NICHD DASH and is not made available to other users.



  3. Screenshot of 'Optional Documentation'
  4. Upload optional documents. You may include your Blanket Material Transfer Agreement for Biospecimen or other Compliance documents if applicable.
  5. Click on the "Upload" button, search for your document, and click "OK." If there is a problem with your document, you will see an error message when you move to the next step.
  6. Click "Next."

12. Supporting Documents – Descriptive

The following steps allow you to upload descriptive documents associated with your study. Descriptive documents include study protocol, codebook/ data dictionary, data collection instruments, and data de-identification methodology. Descriptive Documentation will be available and viewable by any registered NICHD DASH user without approval from the NICHD DASH Data Access Committee.

NOTE: Verify that all the descriptive documents have been properly de-identified before uploading into NICHD DASH.



Screenshot of 'Supporting Documents - Descriptive'
  1. The following documents are required—see the "Required Documents for Submission" section for additional information:
    • Study Protocol
    • Codebook/Variable Dictionary
    • Data Collection Instruments
    • De-identification Methodology

    NOTE: PDF documents are preferred over .DOC or .DOCX; however, all are accepted, including .RTF and .TXT files.



  2. For each document, click on the "Upload" button, search for your document, and click "OK." If there is a problem with your document, an error message will be displayed when you move to the next step.

    Screenshot of 'Optional Descriptive Documents'
  3. Optional documents may be uploaded in the same way. Note that ALL descriptive documentation will be available to registered users without approval from the NICHD DASH Data Access Committee.
  4. Click "Next."

NOTE: Descriptive Documentation will be available and viewable by any registered NICHD DASH user without approval from the NICHD DASH Data Access Committee. Any study documentation that should be limited to approved data users should NOT be uploaded in this section but should be included with your data submission package that will be sent directly to NICHD DASH Administrator (see Data Preparation below).

13. Data Preparation

The NICHD DASH system allows researchers to search for data based on annotated study content. The Data Preparation Tool (DPT) is a downloadable application that you can use offline to prepare your data for submission. It allows you to organize and annotate your study datasets, images and documents. When using the DPT offline, you can save your work and return to it later.

NOTE: All of your data must be de-identified prior to performing data annotation (for de-identification guidance, see "Required Documents for Submission").

Follow the steps below to prepare for annotation:

  1. Ensure that all of your data (datasets, images, and documents) are de-identified and saved in a single, easy-to-find location on your computer. Include the descriptive documents that you have already uploaded.
  2. If you are logged out of NICHD DASH at this stage, you can return to this step of study submission by logging into NICHD DASH and clicking on the "Submissions" button located on the top bar of the homepage. Select "Manage Submissions." You will be directed to the Submission Dashboard displaying your study submissions. Click on the study that you wish to annotate, and navigate to the Data Preparation page.
  3. Screenshot of 'Download Data Preparation Tool'


  4. Download DPT for Windows or for Mac OS X by clicking the appropriate download button.
  5. Open and run DPT. For step-by-step instructions on how to use DPT for preparing your data, annotating data files and uploading data to DASH, see the DPT section below.  
  6. Guidelines for de-identifying your data are available at Guidance for Data De-Identification and Coding
  7. Datasets and images should be in a format that can be easily accessed by others. For example, if your datasets were created using a statistical software package such as SAS, please also provide your datasets as .CSV files.
  8. If you provide .SAS files, consider providing them as .SAS transport files (.XPT files) so that SAS users working in different environments can import your files into their SAS application. You will need to encode .XPT files using utf-8.
  9. In your documentation, please provide the version of the statistical software package that you used to create your datasets and the imaging software used to create your images.
  10. You are required to include the De-identification Methodology document that explains how your datasets and/or images were de-identified.
  11. For documents, .PDF files are preferred but all formats are accepted including .DOC, .DOCX, .RTF, and .TXT.

14. Complete Submission

You are now ready to complete submission of your study.

Screenshot of 'Complete Submission'

  1. First, verify the completeness and accuracy of your submission. This is another opportunity to make sure de-identification of your data is complete. Click Study Preview Page. If you are satisfied with the information on the Study Preview page, click “Submit”.
  2. You have submitted your study. You will receive an email confirmation from NICHD DASH Administrator that your submission has been received.

15. Tracking your Submission via the "Manage Submissions" Dashboard

You are not required to submit your study in one sitting; you can save your work and resume at a later time. To access your ongoing study submission, log into NICHD DASH, click on the "Submissions" button on the top menu bar of the NICHD DASH homepage, and select "Manage Submissions" from the dropdown list.

A list of your study submissions will appear, along with a status column and "action" buttons.

Your studies that have been submitted and submitted will display one of the following statuses:

Status Definition Description
Initiated The Submitter has initiated a new submission. You have started a submission but have not clicked "Next" for the first time in the submission process.
Actions you can take: You can resume your submission by clicking on the "Resume" button from the "Manage Submissions" dashboard at any time while your study is in the "Initiated" status.
In Progress The Submitter is in the process of entering information in the submission steps. You started a submission and are in the midst of the submission process but have not completed it.
Actions you can take: You can resume your submission by clicking on the "Resume" button from the "Manage Submissions" dashboard at any time while your study is in the "In Progress" status.
Submitted The Submitter has clicked "Submit" in the Complete Submission step. You have submitted all documents, files, and information for the study.
Actions you can take: None. You can no longer make changes to your submission; it is now under review by the NICHD DASH Curator.
Approved The appropriate NICHD Division/Center Director or Branch Chief has approved the study submission. Your study has been approved and loaded into NICHD DASH. It is now available in NICHD DASH for other researchers to perform searches and request data from your study.
Actions you can take: None.
Not Approved The submission was not approved. You should have received an email from the NICHD DASH Administrator stating the reason why your study was not approved.
Actions you can take: You can click on the "Edit Submission" button in the "Manage Submissions" dashboard to revise your submission by entering correct information or replacing documentation and/or data.

The Data Preparation Tool (DPT) organizes study items (e.g., datasets, documents, and images) associated with your study and allows you to annotate these items prior to uploading them into NICHD DASH. DPT is a standalone application that you can download to your computer and use offline. Once you have begun to organize your study items, you can save your work at any time and return to it later.

DPT automatically categorizes study items and generates annotation templates in Microsoft Excel, generating one template for each category. You will be asked to approve the categorizations or make the appropriate changes. You will then be instructed to review and provide key information (annotations/metadata) about your data, such as dataset type, format, and document type. Once you have saved your completed annotation templates, DPT will create a .zip file. DPT also requires you to construct a hierarchal structure or schema for your study. Your files are encrypted prior to uploading them into NICHD DASH.

Screenshot of 'Download Data Preparation Tool Introduction page'

At any time, if you need help, you may click on the question mark (?) at the top of the screen. The following Help screen will be displayed.

Screenshot of 'Download Data Preparation Tool Introduction page'

1. Prepare for Annotation

NOTE:Ensure that all your data have been de-identified (for de-identification guidance, see the "Required Documents for Submission" section).

After de-identifying your data, follow the steps below:

  1. Ensure that all of your data (datasets, images, and documents) are de-identified and saved in a single, easy-to-find location on your computer.
  2. If you are logged out of NICHD DASH at this stage, you can return to this step of study submission by logging into NICHD DASH and clicking on the "Submissions" button located on the top bar of the homepage. Select "Manage Submissions." You will be directed to the Submission Dashboard displaying your study submissions. Click on the study that you wish to annotate, and navigate to the Data Preparation page.
  3. Download and install DPT from the Data Preparation page.
  4. Open and run DPT.

2. Dashboard

After opening DPT on your computer, you will see the DPT dashboard, which displays a list of all the studies you have annotated or are currently annotating via DPT. You can save your work and revisit it later by clicking the "Resume" button on the main dashboard.


  1. To start annotating a new study, click the "Add Study" button in the lower left-hand corner.
  2. To resume a previous annotation, click the "Resume" button to pick up where you left off.
  3. Screenshot of 'Download Data Preparation Tool dashboard'

    NOTE:For step-by-step instructions within the DPT, click on the "?" button at any time.


3. Add Study

After clicking on the "Add Study" button on the DPT Dashboard, a pop-up window appears:

Screenshot of 'Add Study in the Data Preparation Tool'
  1. Enter the name of your study in the "Study Name" field. You do not need to use the complete study name—an abbreviated study name will help you remember what data you are submitting.
  2. Make sure you have saved all items (datasets, documents, images) associated with your study in a single, easy-to-find folder on your computer. Click the "Browse" button next to the "Data Location" field, search for the folder, and click "OK.",
  3. A "workspace location" is where DPT will store your annotation work. DPT generates templates that you will then use to annotate your data. Indicate where on your computer you would like these templates to be saved by clicking "Browse" and choosing a folder on your computer. DPT will then generate a sub-folder titled "DPT_Annotations [Study Name]." This sub-folder will contain your templates and a Study Schema you may create using DPT.

    NOTE: Your Workspace Location folder must be completely separate from your Data Location folder. Please make sure that you specify two distinct folders.

  4. Click the "Add to List" button to start the annotation process. You will be taken to the "Categorize Files" page, where you will be able to view your study files. If there are errors in your entry, you will see error messages in the pop-up window.

4. Categorize Files

Each item is assigned to a category (e.g., dataset, document, or image). Each category has a different set of annotation properties (metadata) that are associated with it. DPT analyzes your study items and automatically assigns a category based on the file extension. You can either approve the category auto-selected by DPT for your items or select a different category from the dropdown list.

  1. Select a folder on the left-hand side of the page; the items in that folder will be listed to the right. DPT will have performed a first pass at categorizing your items based on the file extension.
  2. Check to see that each item is appropriately categorized. For example, an .xlsx file will be categorized as a dataset but may be a document. Use your knowledge of the study data to ensure proper categorization. To re-categorize an item, click the dropdown list aligned to that item.
  3. Every categorization must be approved; click the "Approve" checkbox for each item to confirm categorization. You can also click the "Approve All" button located at the top-right hand side of the page to approve all categories for the items in the selected folder.
    Screenshot of 'Categorize Data in the Data Preparation Tool'


  4. Click on “Save” to save your work or “Next” to save and continue. If an item has not been categorized and approved, you will see an error message when you attempt to continue. You will not be able to move forward until all of your study items have been categorized and approved.
  5. Screenshot of 'Categoration Error Message in Data Preparation Tool'
  6. Once all your items are categorized and approved, click the "Next" button, and the tool will create Microsoft Excel spreadsheets – one for each category – and take you to the "Generate Templates" page.

NOTE: You cannot re-categorize your files once you click "Next."In order to recategorize files, you will need to start a new submission in DPT.

5. Generate Templates

DPT generates annotation templates in Microsoft Excel based on the categories that were selected in the previous step; one template will be generated for each category of study items. For example, all of your documents will be referenced in the DocumentTemplate.xlsx spreadsheet. You will be able to annotate your study items in these templates.

  1. Indicate if you are submitting any biospecimen information with this study.
  2. Click on the Generate Templates button.
  3. Screenshot of 'Generate Templates in Data Preparation Tool'
  4. When you click on "Generate Templates," DPT will show you the location of your templates and remind you to annotate your study items. Templates are provided in Microsoft Excel format. A link for Excel is provided on the “Generate Templates” page.
    Screenshot of 'Workspace Location for Annotating Templates'
  5. You may select "Go To Workspace" from here and be taken to your workspace location to annotate your study items. Or, if you have already completed your study annotations, you may click on "Annotations Completed." Do not click on "Annotations Completed" until you have competed your annotations.

6. Annotate Templates

You should annotate your study offline and do not need to open DPT. Templates are provided in Microsoft Excel format. A link for Excel is provided on the “Generate Templates” page. Follow the steps below to annotate:

  1. Find your templates. They have been saved by DPT to your computer in the "Workspace Location" you specified in the "Add Study" section.

    Screenshot of 'Annotate in Data Preparation Tool'
  2. Open your templates and enter descriptions/annotations associated with each item. Each row in the template represents a study item. File names are shown in the first column; other columns are for properties that can be assigned to your items.


  3. Screenshot of 'Filesystem during Annotation in Data Preparation Tool'
  4. Some columns in each spreadsheet will have a dropdown list with annotations you can select to describe your data. If an appropriate descriptor is not available in the dropdown list, you can choose "Other" and enter a new descriptor in the next column.


  5. Screenshot of 'Add a Description within your file system in the Data Preparation Tool'
  6. You can drag and drop information from row to row. This is especially helpful when you have many similar items.
  7. Be sure to annotate all templates and pay particular attention to the required fields. The required fields are labeled as such in the column headings. The more descriptions/annotations you provide, the easier it will be for others to find your data in NICHD DASH.
  8. Save your work; do not "save as" a new file name or save your templates in a different location.

7. Validate Templates

Once you have completed your annotations, return to the "Validate Templates" section in DPT.

Screenshot of 'Validate your templates in the Data Preparation Tool'

  1. Click on the "Validate Templates" button.
  2. During validation, DPT checks that you have entered information in the required fields of your templates.
  3. If you have not entered all the required information, you will receive the following error message:


  4. Screenshot of 'Error message generated while validating your templates in the Data Preparation Tool'

  5. DPT will help you locate missing values by generating a table with columns labeled "Source", "Column", "Row", "Error Description", and "Solution."

    Screenshot of 'List of errors in the Data Preparation Tool'
  6. Return to your templates. It may take a few attempts to fill out all your templates correctly. Complete the changes and save.
  7. You will either receive a “passed validation” message or a message detailing a list of errors.
  8. Continue correcting any errors using Microsoft Excel and click "Re-Validate" until there are no more errors, and then click "OK."
Screenshot of 'Validation Success in the Data Preparation Tool'

8. Create/Edit Schema

The Create/Edit Schema page allows you to build a Study Schema that will be displayed on the NICHD DASH Overview Page associated with your study. The Study Schema provides an outline of the main headings and/or data collection points in the study (e.g., interview visits, sample collections, and laboratory tests). These will be organized hierarchically, and there can be as many levels as necessary in the hierarchy.



Screenshot of 'Study Schema in the Data Preparation Tool'


You are providing a schematic representation of the main elements of your study as outlined in your study protocol. You can decide what events, levels, headings, and data collection points work best to describe your study data collection process. If you have previously created a study schema and saved it as a JSON file, you can upload it to DPT by clicking on the "Load Schema" button.

When you click "Start New Schema," a default outline will appear:



Screenshot of 'Study Schema outline in the Data Preparation Tool'


You can use the outline provided or start your own using the instructions below.



Add a Heading (e.g., event/data collection point/etc.)


Screenshot of 'Adding a Heading in the Study Schema within the Data Preparation Tool'
  1. Click on the "Add Heading" button to add a heading. Name your heading in the "Name" box (e.g. "Enrollment Visit 1")
  2. You can describe the heading in more detail in the description box. Add as many headings as you wish.

Add a Sub-Heading (e.g. data collected)


To add sub-headings to your main heading, select your main heading in the box on the right then click on "Add Sub- Heading." Fill in the name and description as above.


Remove a Heading or Sub-Heading


To remove a heading, select the heading you wish to delete, then click on the "Delete Heading" button. If you want to delete the entire schema, click on the "Delete Schema" button. This will allow you to start over.

If the selected heading you wish to delete has one or more sub-headings, DPT will warn you that deleting the main heading will cause its corresponding sub-headings to be deleted.

Click the "Save" button at any time to save your work and return to it at a later time.

9. Create Submission Files

The following steps will guide you through generating your submission files.

Screenshot of 'Create Submission Files in the Data Preparation Tool'

  1. Click on the "Upload Submission" button. You will be prompted to enter the location for your encrypted submission files. Click “Browse” and select the desired location. Click “Encrypt Files” to create a set of encrypted submission files in the specified location.
  2. Screenshot of Upload Submission
  3. A message appears that prompts you to make sure you are connected to the internet for the upload process. Click “Continue” once you have confirmed you are connected to the internet.
  4. Screenshot of internet connection required
  5. You will be prompted for your NICHD DASH e-mail account and password. Enter your credentials and click “Login”.
  6. Select the study you want to encrypt and upload. Click “Choose Study”.
  7. Screenshot of select active study for upload
  8. You are given one last chance to review your submission request. Review the Study selected and the file name. Click “Upload Submission”.
  9. Screenshot of review submission
  10. The upload status is displayed.
  11. Screenshot of submission progress
  12. When you upload has successfully completed a message is displayed. The uploaded annotation files can now be submitted from the NICHD DASH website. Login to the website and complete the submission process described in the Submission Section
  13. Screenshot of upload successful

NICHD welcomes feedback on NICHD DASH to inform future improvements to the website.

  1. Click on the "Feedback" widget on the lower left side of the NICHD DASH homepage. If you are not logged into NICHD DASH, you will be required to provide your email address, title, first name, last name, and middle initial to submit feedback. If you are logged in, your information will be auto-populated.
  2. Screenshot of 'Link to Feedback From Main Navigation'


  3. 2. Select type of feedback and section from the dropdown boxes.
    Screenshot of 'Feedback Page'


  4. 3. Enter your comments in the Comments field.
  5. 4. Click on "Submit Feedback." You will receive an email confirmation from the NICHD DASH Administrator upon receipt of your feedback.




The following resources may be helpful when using NICHD DASH. You may access all of them by selecting "Resources" on the top menu bar of the NICHD DASH homepage.

Screenshot of 'Resources Tab on The NICHD DASH homepage Page'

1. NICHD DASH Policy

NICHD DASH Data Archive Policy Statement provides an overview of the data archive component (not the specimen archive component) of NICHD DASH that is available to house research data from NICHD funded research studies when such data are ready for sharing as per NIH policies. This Policy Statement also serves to inform investigators about how to submit data to, and request data from, NICHD DASH.

2. DASH User Agreement

During registration, you are required to agree to the Terms and Conditions of the NICHD DASH User Agreement.ions of the NICHD DASH User Agreement.

3. Data Request Checklist

The Data Request checklist provides guidance on information required for completing Data Request process.

4. DASH Data Use Agreement

All data requests for studies stored in NICHD DASH must be accompanied by an NICHD DASH Data Use Agreement (DUA) signed by the Data Recipient (Lead Investigator) and the Authorized Organization Representative. To protect and promote the confidentiality and privacy of the individuals whose data have been deposited into NICHD DASH, NICHD requires all requesters of such data to sign and agree to the terms of the NICHD DASH DUA as a condition of access. A requester who is granted access to NICHD DASH data is expected to adhere to the specifications of the DUA.

5. DASH Data Preparation Tool

The NICHD Dash Data Preparation Tool is available for download for Windows and Mac OS X.

6. Institutional Certification

The Institutional Certification Template provides guidance to investigators on submitting an Institutional Certification from responsible Institutional Official(s) of the submitting institution stating that they approve submission to the NICHD DASH and that the identities of research participants will not be disclosed to the NICHD DASH. l not be disclosed to the NICHD DASH.

7. Guidance for Data De-Identification and Coding

The Guidance for Data De-Identification and Coding provides general guidance to investigators on de-identification and coding of data that will be submitted to NICHD DASH.

8. Links to Other Archives

This is a list of NICHD studies that are currently available in other archives.

9. Frequently Asked Questions (FAQs)

The FAQs aims to provide answers to various questions that users may have about NICHD DASH and supplements the NICHD DASH Policy and the NICHD DASH User Tutorial.


The NICHD DASH Tutorial is available for download as a PDF here: NICHD DASH Tutorial [803 kB]