Links to External Archives for Other NICHD Funded Studies

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# Study/Project Name Database/Repository/Archive Name Archives/ Database URL Institute/Division/Branch/Network
1 Abundant Quantitative Trait Loci Exist for DNA Methylation and Gene Expression in Human Brain Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000249.v2.p1 NICHD
2 AIDS Clinical Research Trials Group (ACTG) International Maternal Pediatric Adolescent AIDS Clinical Trials (IMPAACT) ACTG-IMPAACT Specimen Repository http://www.specimenrepository.org/home.html Maternal and Pediatric Infectious Disease Branch (MPIDB) and National Institute of Allergy and Infectious Diseases (NIAID)
3 Baylor Sea Urchin Genome Project Sea Urchin Genome Database http://www.spbase.org/SpBase/ Developmental Biology and Structural Variation Branch (DBSVB)
4 BEAM Trial – Clinical Trial of the Beneficial Effects of Antenatal Magnesium Sulfate GWU Biostatistics Center Database https://mfmu.bsc.gwu.edu/publicly-available-data-sets Maternal-Fetal Medicine Units (MFMU) Network
5 BEARS Trial – A Randomized Placebo-Controlled Clinical Trial of Antenatal Corticosteroid Regimens GWU Biostatistics Center Database https://mfmu.bsc.gwu.edu/publicly-available-data-sets Maternal-Fetal Medicine Units (MFMU) Network
6 Calcium For Preeclampsia Prevention (CPEP) Trial NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
7 Carolina Abecedarian Project (ABC) and the Carolina Approach to Responsive Education (CARE), Age 21 Follow Up Study, 1993 - 2003 (ICPSR 32262) Interuniversity Consortium for Political and Social Research (ICPSR) https://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/32262?q=NICHD&searchSource=icpsr-landing&paging.startRow=51 Child Development and Behavior Branch (CDBB)
8 Cesarean Section Registry – An Observational Study of Cesarean Section and Vaginal Birth After Cesarean Section GWU Biostatistics Center Database https://mfmu.bsc.gwu.edu/publicly-available-data-sets Maternal-Fetal Medicine Units (MFMU) Network
9 Carolina Abecedarian Project and the Carolina Approach to Responsive Education (CARE), 1972 - 1992 (ICPSR 4091) Interuniversity Consortium for Political and Social Research (ICPSR) https://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/4091?q=NICHD&searchSource=icpsr-landing&paging.startRow=51 Child Development and Behavior Branch (CDBB)
10 Cincinnati Magnetic Resonance Imaging of Neurodevelopment (C-Mind) Project C-MIND database https://cmind.research.cchmc.org/ Child Development and Behavior Branch (CDBB)
11 Citicholine Brain Injury Treatment Trial (COBRIT) Federal Interagency Traumatic Brain Injury Research (FITBIR) informatics system http://fitbir.nih.gov/ National Center for Medical Rehabilitation Research (NCMRR)
12 Collaborative Perinatal Project (CPP) Add-on Study: Cytokines, Chemokines, and Spontaneous Abortion NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
13 Collaborative Perinatal Project (CPP) Add-on Study: CPP Caffeine And Miscarriage NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
14 Collaborative Perinatal Project (CPP) Add-on Study: CPP Follow-up in PA and RI NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
15 Collaborative Perinatal Project (CPP) Add-on Study: Maternal Polymorphisms and Risk of Phenytoin-induced Congenital Malformations NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
16 Collaborative Perinatal Project (CPP) Add-on Study: Maternal Thyroid Autoimmunity and Sensorineural Hearing Loss NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
17 Collaborative Perinatal Project (CPP) Add-on Study: Polio Vaccination, Maternal SV40 Seroconversion, and Risk of Childhood Cancer NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
18 Collaborative Perinatal Project (CPP) Add-on Study: Vitamin D: A Link to Racial Disparities in Adverse Birth Outcomes (ongoing) NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
19 Consanguinity and Rare Mutations Outside of MCCC Genes Underlie Non-Specific Phenotypes of MCC Deficiency Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000776.v1.p1 NICHD
20 Consortium on Safe Labor NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
21 Cortisol Quantification Investigation: Prospective, Observational Study Comparing Free versus Total Serum Cortisol in PICU Patients (CQI) NICHD Collaborative Pediatric Critical Care Network http://www.cpccrn.org/studyDatasets/index.html Pediatric Trauma and Critical Illness Branch (PTCIB)
22 CPCCRN Core Data Project (CCDP): Characterizing Patient Populations in the Collaborative Pediatric Critical Care Research Network (CPCCRN) NICHD Collaborative Pediatric Critical Care Network http://www.cpccrn.org/studyDatasets/index.html Pediatric Trauma and Critical Illness Branch (PTCIB)
23 Critical Asthma Mortality and Morbidity Planning Study NICHD Collaborative Pediatric Critical Care Network http://www.cpccrn.org/studyDatasets/index.html Pediatric Trauma and Critical Illness Branch (PTCIB)
24 Cytogenetic & Down Syndrome Models Resource Jackson Laboratory Repository http://www.jax.org/cyto/index.html Intellectual and Developmental Disabilities Branch (IDDB)
25 Danish Perinatal Study NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
26 Data Sharing for Demographic Research Interuniversity Consortium for Political and Social Research (ICPSR) http://www.icpsr.umich.edu/icpsrweb/DSDR/studies?classification=DSDR.VIII.*&archive=DSDR Child Development and Behavior Branch (CDBB)
27 Databrary, a video data library for developmental science Databrary https://nyu.databrary.org NICHD and the National Science Foundation
28 Development of a Quantitative Functional Status Scale (FSS) for Pediatric Patients NICHD Collaborative Pediatric Critical Care Network http://www.cpccrn.org/studyDatasets/index.html Pediatric Trauma and Critical Illness Branch (PTCIB)
29 Diabetes and Early Pregnancy (DIEP) NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
30 Down Syndrome Consortium DS-Connect™: The Down Syndrome Registry https://dsconnect.nih.gov/ Intellectual and Developmental Disabilities Branch (IDDB)
31 Epidural Analgesia During Labor and Delivery NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
32 FACTOR V LEIDEN Study – A Prospective Observational Study of Women with Factor V Leiden Mutation in Pregnancy GWU Biostatistics Center Database https://mfmu.bsc.gwu.edu/publicly-available-data-sets Maternal-Fetal Medicine Units (MFMU) Network
33 Fragile Families and Child Wellbeing Study Office of Population Research Data Archive http://www.fragilefamilies.princeton.edu/ Population Dynamics Branch (PDB)
34 Fragile Families and Child Wellbeing Study [Public Use Data] (ICPSR 31622) Interuniversity Consortium for Political and Social Research (ICPSR) https://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/31622?q=NICHD&searchSource=icpsr-landing&paging.startRow=26 Child Development and Behavior Branch (CDBB)
35 GEISHA (Gallus Expression In Situ Hybridization Analysis) A chick embryo gene expression resource GEISHA Repository http://geisha.arizona.edu/geisha/ Developmental Biology and Structural Variation Branch (DBSVB)
36 Gene Mutation and Rescue in Human Congenital Diaphragmatic Hernia (CDH) Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
37 Genetic Associations in Idiopathic Talipes Equinovarus (GAIT) Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
38 GENEVA Study of Preterm Delivery (African-American) Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
39 GWAS of Preterm Birth Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
40 HAPO Maternal Glycemia and Birthweight GEI Study Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
41 Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988 (ICPSR 9795) Interuniversity Consortium for Political and Social Research (ICPSR) https://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/9795?q=NICHD&searchSource=icpsr-landing&paging.startRow=26 Child Development and Behavior Branch (CDBB)
42 Interdisciplinary Comprehensive Arm Rehab Evaluation (ICARE) Stroke Initiative Data Sharing: National Institute of Neurological Disorders and Stroke (NINDS) http://www.ninds.nih.gov/research/clinical_research/toolkit/data_sharing.htm National Institute of Neurological Disorders and Stroke (NINDS)
43 International Skeletal Dysplasia Registry The International Skeletal Dysplasia Registry Reference Atlas http://atlas.csmc.edu/ Developmental Biology and Structural Variation Branch (DBSVB)
44 Interuniversity Consortium for Political and Social Research (ICPSR) - All studies funded by NICHD Interuniversity Consortium for Political and Social Research (ICPSR) http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies?q=NICHD&searchSource=find-analyze-home&sortBy= Population Dynamics Branch (PDB)
45 International Standards for Cytogenomic Arrays Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
46 Location and Function of Cytosine-5 Methylation in RNA Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
47 Locomotor Experience Applied Post-Stroke Trial: LEAPS Data Sharing: National Institute of Neurological Disorders and Stroke (NINDS) http://www.ninds.nih.gov/research/clinical_research/toolkit/data_sharing.htm National Center for Medical Rehabilitation Research (NCMRR) and National Institute of Neurological Disorders and Stroke (NINDS)
48 Longitudinal Study of Vaginal Flora NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
49 Management of Early Pregnancy Failure Trial NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
50 Measuring Opioid Tolerance Induced by Fentanyl (or Other Opioids) NICHD Collaborative Pediatric Critical Care Network http://www.cpccrn.org/studyDatasets/index.html Pediatric Trauma and Critical Illness Branch (PTCIB)
51 Mexican Migration Project (MMP) and Latin American Migration Project (LAMP) The MMP Database and the The LAMP Databases MMP - http://mmp.opr.princeton.edu/home-en.aspx or LAMP - http://lamp.opr.princeton.edu/ Population Dynamics Branch (PDB)
52 Mouse Genome Informatics (MGI) project GXD: Gene Expression Database for mouse development http://www.informatics.jax.org/expression.shtml Developmental Biology and Structural Variation Branch (DBSVB)
53 National Children's Study Vanguard Study Formative Research Study (NCS) Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000662.v1.p1 NICHD
54 National Institute of Neurological Disorders and Stroke (NINDS) Archived Clinical Research Datasets National Institute of Neurological Disorders and Stroke (NINDS)  http://www.ninds.nih.gov/research/clinical_research/toolkit/data_sharing.htm National Institute of Neurological Disorders and Stroke (NINDS) 
55 National Longitudinal Study of Adolescent to Adult Health Add Health http://www.cpc.unc.edu/projects/addhealth Population Dynamics Branch (PDB)
56 National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994 - 2008 [Public Use] (ICPSR 21600) Interuniversity Consortium for Political and Social Research (ICPSR) https://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/21600?q=NICHD&searchSource=icpsr-landing&paging.startRow=51 Child Development and Behavior Branch (CDBB)
57 National Longitudinal Surveys: NLSY79 Children and Young Adults The Investigator http://www.bls.gov/nls/nlsy79ch.htm Population Dynamics Branch (PDB)
58 Neural Tube Defects (NTD) NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
59 New Immigrant Survey (NIS) NIS Data http://nis.princeton.edu/ Population Dynamics Branch (PDB)
60 NICHD Genomic and Proteomic Network for Preterm Birth Research (GPN) Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
61 NICHD International Site Development Initiative (NISDI) https://www.nichdclinicalstudies.org/SitePages/NISDI.aspx Maternal and Pediatric Infectious Disease Branch (MPIDB)
62 NICHD Neonatal Research Network (NRN) Extremely Preterm Birth Outcome Data http://nichd.nih.gov/about/org/der/branches/ppb/programs/epbo/Pages/index.aspx Pregnancy and Perinatology Branch (PPB)
63 NICHD Study of Early Child Care and Youth Development (SECCYD) Series Interuniversity Consortium for Political and Social Research (ICPSR) https://www.icpsr.umich.edu/icpsrweb/ICPSR/series/233 Child Development and Behavior Branch (CDBB)
64 NIH-DC Initiative to Reduce Infant Mortality in Minority Populations (Multiple Studies) NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
65 Norway-Alabama Fetal Growth Study NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
66 Numerous Autism Spectrum Disorders (ASD) Research Studies National Database for Autism Research http://ndar.nih.gov/ Intellectual and Developmental Disabilities Branch (IDDB)
67 Numerous Data Sharing for Demographic Research (DSDR) Studies Data Sharing for Demographic Research http://www.icpsr.umich.edu/icpsrweb/DSDR/ Population Dynamics Branch (PDB)
68 Numerous Replication Kits in the Teen Pregnancy Collection Program Archive on Sexuality, Health, and Adolescence (PASHA) http://www.socio.com/pasha.php Population Dynamics Branch (PDB)
69 Numerous Studies in the Teen Pregnancy Collection The Data Archive on Adolescent Pregnancy and Pregnancy Prevention (DAAPPP) http://www.socio.com/teenpregnancydata.php Population Dynamics Branch (PDB)
70 OMEGA- 3 Study – A Randomized Trial of Omega-3 Fatty Acid Supplementation to Prevent Preterm Birth in Pregnancies at High Risk GWU Biostatistics Center Database https://mfmu.bsc.gwu.edu/publicly-available-data-sets Maternal-Fetal Medicine Units (MFMU) Network
71 PACTG 185 - Anti-HIV Immunoglobulin (HIVIG) in Prevention of Maternal-Fetal HIV Transmission: Pediatric AIDS Clinical Trials Group (PACTG) protocol 185 BioLINCC https://biolincc.nhlbi.nih.gov/studies/pactg/?q=185 Maternal and Pediatric Infectious Disease Branch (MPIDB)
72 Panel Study of Income Dynamics (PSID) Series Interuniversity Consortium for Political and Social Research (ICPSR) https://www.icpsr.umich.edu/icpsrweb/ICPSR/series/131 Child Development and Behavior Branch (CDBB)
73 Panel Study of Income Dynamics Child Development Supplement (PSID CDS) and Transition into Adulthood (PSID TA) studies PSID Data Center http://psidonline.isr.umich.edu/Studies.aspx Population Dynamics Branch (PDB)
74 Pediatric Intensive Care Unit Bereavement Study NICHD Collaborative Pediatric Critical Care Network http://www.cpccrn.org/studyDatasets/index.html Pediatric Trauma and Critical Illness Branch (PTCIB)
75 Pediatric MRI Study Pediatric MRI Data Repository https://ndar.nih.gov/edit_collection.html?id=1151 Child Development and Behavior Branch (CDBB)
76 Pelvic Floor Disorders Network Pelvic Floor Disorders Network https://www.pfdnetwork.org/Home.aspx Gynecologic Health and Disease Branch (GHDB)
77 POLYGEN (Polycystic Ovary Syndrome Genetics) Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000368.v1.p1 NICHD
78 PPCOS II: Pregnancy in Polycystic Ovary Syndrome II; PPCOS I: Treatment of Infertility in Women with Polycystic Ovary Syndrome; and S-IUI: Efficiency of Superovulation and Intrauterine Insemination in the Treatment of Infertility Reproductive Medicine Network Data and Specimen Repository http://medicine.yale.edu/ysph/c2s2/rmn/index.aspx Fertility and Infertility (FI) Branch
79 Progesterone & Follow-up – Randomized Trial of 17-alpha-hydroxyprogesterone Caproate for Prevention of Preterm Birth in High Risk Women GWU Biostatistics Center Database https://mfmu.bsc.gwu.edu/publicly-available-data-sets Maternal-Fetal Medicine Units (MFMU) Network
80 Rapid Whole Genome Sequencing for Genetic Disease Diagnosis in Neonatal Intensive Care Units Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
81 Reaching for Excellence in Adolescent Care and Health (REACH) Project Reaching for Excellence in Adolescent Care and Health (REACH) data and specimen repository http://www.socio.com/reachdata.php Maternal and Pediatric Infectious Disease Branch (MPIDB)
82 Severe Combined Immunodeficiencies (SCID), Lysosomal Storage Disorders (LSD), and Inborn Errors of Metabolism Collaborative Spinal Muscular Atrophy Research Projects Newborn Screening Translational Research Network https://www.nbstrn.org/ Intellectual and Developmental Disabilities Branch (IDDB)
83 Specialized Cooperative Centers Program in Reproduction and Infertility Research SCCPIR Ovarian Kaleidoscope Database and Endometrial Database Resource https://sccpir.org/ Fertility and Infertility (FI) Branch
84 STTARS – Twins & Triplets – Randomized Trial of 17-alpha-hydroxyprogesterone Caproate for Prevention of Preterm Birth in Multifetal Gestation GWU Biostatistics Center Database https://mfmu.bsc.gwu.edu/publicly-available-data-sets Maternal-Fetal Medicine Units (MFMU) Network
85 Swimming Lessons and the Risk of Drowning in Children NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
86 The Critical Illness Stress-induced Immune Suppression Prevention Trial (CRISIS) NICHD Collaborative Pediatric Critical Care Network http://www.cpccrn.org/studyDatasets/index.html Pediatric Trauma and Critical Illness Branch (PTCIB)
87 The Family Life Project, Phase I, September 2003 - September 2007 (ICPSR 34602) Interuniversity Consortium for Political and Social Research (ICPSR) https://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/34602?q=family+life+project&searchSource=revise Child Development and Behavior Branch (CDBB)
88 The National Children’s Study The National Children’s Study Archive https://ncsarchive.s-3.net/ NICHD
89 The Placenta Harbors a Unique Microbiome Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
90 Type 1 Diabetes Genetics Consortium (T1DGC): Genome-Wide Association Study in Type 1 Diabetes, 2008 Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
91 U.S. National Health Interview Survey (NHIS) Integrated Health Interview Series (IHIS) https://www.ihis.us/ihis/index.shtml Population Dynamics Branch (PDB)
92 University of Maryland Brain and Tissue Bank NIH NeuroBioBank http://medschool.umaryland.edu/btbank/ Intellectual and Developmental Disabilities Branch (IDDB)
93 Vaginal Infections and Prematurity (VIP) Study NICHD/DIPHR Biospecimen Repository Access and Data Sharing (BRADS) https://brads.nichd.nih.gov/ Division of Intramural Population Health Research (DIPHR)
94 Virtual Human Embryo (VHE) project Carnegie Collection of human embryos http://virtualhumanembryo.lsuhsc.edu/default.htm or http://www.ehd.org/virtual-human-embryo/ Developmental Biology and Structural Variation Branch (DBSVB)
95 Whole Exome and Transcriptome Sequencing in Sporadic ALS Database of Genotypes and Phenotypes (dbGaP) http://www.ncbi.nlm.nih.gov/gap/?term=NICHD NICHD
96 Xenbase: A Xenopus model organism Xenbase: A Xenopus model organism database http://www.xenbase.org/ Developmental Biology and Structural Variation Branch (DBSVB)
97 ZFIN: The zebrafish model organism ZFIN: The zebrafish model organism database http://zfin.org Developmental Biology and Structural Variation Branch (DBSVB)